scholarly journals Are rare diseases overlooked by medical education? Awareness of rare diseases among physicians in Poland: an explanatory study

2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Dariusz Walkowiak ◽  
Jan Domaradzki
Keyword(s):  
Rare Diseases ◽  
Basic Knowledge ◽  
Public Health Issue ◽  
The Internet ◽  
Medical Sciences ◽  
Self Assessment ◽  
Medical Curricula ◽  
Common Diagnosis ◽  
Learning Programs ◽  
E Learning

Abstract Background During their studies, future physicians are often taught that while evaluating a patient they should first consider a common diagnosis and not a rare one. Consequently, although most physicians will face the diagnosis or treatment of a rare disease (RD) at some point in their professional lives, many assume that they might never meet a patient with a specific RD. Moreover, many physicians lack knowledge about RDs and are not prepared for caring for RD patients. Thus, the aim of this paper was to assess the awareness of RDs among Polish physicians. Methods The study was conducted among 165 medical doctors taking their specialization courses at the Poznan University of Medical Sciences, Poland. The questionnaire assessed physicians’ knowledge about the number, examples, etiology and estimated frequency of RDs. It also checked the self-assessment of physicians competence in RDs, as well as their opinions about university curricula in this respect. Results The study shows that while most physicians lacked basic knowledge about the etiology, epidemiology and prevalence of RDs, many had also problems with separating RDs from more common disorders. Moreover, 94.6% of physicians perceived their knowledge on RDs as insufficient or very poor and less than 5% feel prepared for caring for patients with RDs. Simultaneously, while over 83% of physicians believed that RDs constitute a serious public health issue, 17% were of the opinion that mandatory courses on RDs are not necessary in medical curricula and 6.7% were not interested in broadening their knowledge of such diseases. Most respondents derived their knowledge on RDs from university courses, scientific literature and research, as well as from the Internet. Conclusion Since the study shows that there is a urgent need to fill the gap in physicians’ knowledge on RDs, it seems advisable that extra courses on these diseases should be added to medical curricula and physicians’ postgraduate training. Furthermore, as the Internet is the main source of information on RDs, e-learning programs and courses for all medical professionals should be organized.

scholarly journals Barriers in Implementing E-Learning in Hormozgan University of Medical Sciences

2015 ◽  
Vol 8 (7) ◽  
pp. 83 ◽  
Author(s):  
Parvin Lakbala
Keyword(s):  
English Language ◽  
Cross Sectional Study ◽  
Point Of View ◽  
Medical Sciences ◽  
Learning Program ◽  
Cross Sectional ◽  
Learning Programs ◽  
Proper Training ◽  
E Learning ◽  
The University

<p><strong>BACKGROUND: </strong>E-learning provides an alternative way for higher educational institutes to deliver knowledge to learners at a distance, rather than the traditional way. The aim of this study is to identify the barrier factors of e-learning programs in Hormozgan University of Medical Sciences (HUMS) in respect of the students and lecturers’ point of view.</p><p><strong>METHODS:</strong> A cross-sectional study based on a questionnaire was conducted among 286 of students and lecturers in the nursing, midwifery and paramedic schools of HUMS. Two hundred and eighty-six participants filled in the questionnaire: 256 students, and 30 lecturers.</p><p><strong>RESULTS: </strong>Results of the study showed a lack of proper training in e-learning courses of the university 182 (69.1%), limited communication with the instructor 174 (68%) and the learners dominance of English language 174 (68%) showed the greatest importance for the students. The awareness about e-learning program was 80% and 43% among lecturers and students respectively.</p><p>The dominance of English language 26 (86.7%) and lack of research grants for e-learning 23 (76.6%) and lack of proper training on e-learning courses from the university 20 (66.7 %) were the most important barrier factors of implementing e-learning for lecturers. E-learning courses to supplement classroom teaching was a solution that mentioned by the majority of students 240 (93.8%) and lecturers 29 (96.7%) in this study.</p><p><strong>CONCLUSIONS:</strong> The positive perception of e-learning is an important consequence effect in the future, educational development of nursing, midwifery and paramedic schools.</p>

Analisis Keefektivitasan Pemanfaatan E-Learning Sebagai Media Pembelajaran Pendidikan Agama Islam Pada Masa Pandemi Corona (Covid-19)

2020 ◽  
Vol 7 (10) ◽  
pp. 875-894
Author(s):  
Yeni Yuliana
Keyword(s):  
Distance Learning ◽  
Religious Education ◽  
Computer Technology ◽  
Learning Process ◽  
Teaching And Learning ◽  
Quality Standards ◽  
Internet Technology ◽  
The Internet ◽  
Face To Face ◽  
E Learning

Abstract The internet can be made as a way to transfer knowledge from lecturers to students, while Learning that utilizes the internet is one of the E-Learning Learning media. E-learning is distance learning that utilizes computer technology or computer networks or the Internet E-learning, so that it can enable the learning process through computers in their respective places without having to physically go to attend classes or lectures in class, Systems e-learning learning is a new way of teaching and learning. E-learning as a special learning media PAI courses provide a very important role and a large function in the course because so far there are many shortcomings and weaknesses such as the limitations of space and time in the teaching and learning process through E-learning which prioritizes the efficiency of learning so students get full teaching even though they do not have to be face to face, can also be accessed anywhere, anytime, according to the assignments given by the lecturer usually scheduled with a specified deadline. The development of education towards e-learning is a must so that the quality standards of education can be improved, E-learning is one of the uses of internet technology in the delivery of learning and its broad reach. E-learning can also be an answer to a health problem that is Pandemic Corona (Covid-19) which is very influential also in every aspect of life, especially in education.Keywords: Effectiveness, Utilization, Islamic Religious Education, E-Learning, Covid 19. Abstrak Internet dapat dijadikan cara untuk mentransfer ilmu pengetahuan dari Dosen kepada mahasiswa/mahasiswi. Adapun Pembelajaran yang memanfaatkan internet salah satunya adalah media pembelajaran E-Learning. E-learning adalah pembelajaran jarak jauh (distance learning) yang memanfaatkan  teknologi komputer atau jaringan komputer atau internet E-learning, sehingga dapat  memungkinkan proses pembelajaran melalui komputer di tempat mereka  masing– masing tanpa harus secara fisik  pergi  mengikuti pelajaran atau pun  perkuliahan di kelas,  Sistem pembelajaran e-learning adalah cara baru dalam proses belajar mengajar. E-learning  sebagai   media pembelajaran khususnya mata kuliah PAI memberikan  peran   sangat   penting  dan fungsi yang besar pada mata kuliah tersebut karena selama  ini terdapat banyak  kekurangan  dan kelemahan seperti keterbatasan ruang dan waktu dalam  proses belajar  mengajar melalui E-learning yang  mengedepankan keefisienan dalam belajar sehingga  mahasiswa mendapat pengajaran yang penuh meski tidak harus bertatap muka, juga bisa di akses di mana saja, kapan saja,  sesuai dengan tugas yang diberikan oleh dosen biasanya terjadwal dengan  batas  waktu  yang  di tentukan. Pengembangan  pendidikan menuju e-learning merupakan suatu keharusan agar standar mutu pendidikan dapat ditingkatkan,  E-learning merupakan salah satu penggunaan teknologi internet dalam penyampaian  pembelajaran  serta  jangkauannya yang luas. E-learning  juga dapat menjadi jawaban dari suatu permasalahan kesehatan yaitu Pandemi Corona (Covid-19) ini yang sangat berpengaruh juga pada setiap aspek kehidupan terutama bidang pendidikan.Kata kunci  :  Keefektifitas, Pemanfaatan, Pendidikan Agama Islam,  E-Learning, Covid 19.  

PEMBELAJARAN E-LEARNING

2019 ◽  
Vol 2 ◽  
Author(s):  
Nuke Lulu Ul Chusna
Keyword(s):  
Subject Matter ◽  
Technological Progress ◽  
Learning Culture ◽  
Learning System ◽  
Internet Technology ◽  
The Internet ◽  
Digital Format ◽  
E Learning ◽  
Context Of Learning ◽  
Present Subject

The internet can be used as a way to transfer knowledge from teachers to students. Learning that utilizes the development of technology and information, namely the internet, one of which is the e-learning learning system. E-learning is a form of conventional learning that is transferred in digital format through internet technology, not only to present subject matter on the internet but also must be in accordance with the principles of learning.The e-learning learning model results in changes in learning culture in the context of learning. Learning becomes very flexible, because it can be adjusted to the availability of time from students in learning the material provided by the teacher.The teacher determines the success of students in learning, therefore teachers are required to have the ability to adapt to technological progress. Keywords: ICT,e-learning, e-learning learning

Automated system for creating training programs for mass professional users

2020 ◽  
pp. 21-27
Author(s):  
V.K. Grigoriev ◽  
A.A. Biryukova ◽  
A. Yu. Volk ◽  
A.S. Ilyushechkin
Keyword(s):  
Experimental Verification ◽  
Training Programs ◽  
Automated System ◽  
Software Product ◽  
Learning Programs ◽  
E Learning ◽  
The Creation ◽  
The Impact

The article discusses the automation of the creation and use of e-learning programs. The impact of automating the learning of a large number of users on the effectiveness of the introduction of a new software product is analyzed. The methods and algorithms that increase the efficiency of creating electronic training programs on example of the author’s automated system “Tutor Builder” are described. The results of experimental verification of the automated system are provided.

Status quo of Nursing Informatics Competencies for Nurses Under Standardized Training -A Cross-Sectional Study (Preprint)

2019 ◽  
Author(s):  
Kejimu Sunzi ◽  
Cheng Lei ◽  
Zhuoyuanyuan Chen ◽  
Baolu Zhang
Keyword(s):  
Influencing Factors ◽  
Online Survey ◽  
Rapid Development ◽  
Professional Knowledge ◽  
Clinical Information ◽  
The Internet ◽  
Nursing Informatics ◽  
Self Assessment ◽  
Cross Sectional ◽  
Knowledge And Skills

BACKGROUND The rapid development of health information technology has an increasingly significant impact on nursing work. The development of informatization also puts forward higher requirements for nurses under standardized training (NUST). Informatics knowledge and skills are essential if clinicians are to master the large volume of information generated in healthcare today. Nurses with competent nursing informatics competencies (NIC) will be able to better adapt to the needs of work and the development of the times. OBJECTIVE This study aimed to explore, analyze, and discuss the current situation of NIC of NUST in China, and analyze the influencing factors, to provide references for improving the NIC of NUST. METHODS We conducted a cross-sectional survey of standard training nurses' NIC in a tertiary hospital in Sichuan Province, China, with convenience sampling. The study consists of two parts included socio-demographic characteristics and NIC, a self-designed general information questionnaire, and a Self-Assessment Nursing Informatics Competency Scale-SF28 were used as survey tools. An online survey collected the data, and the scores of nurses' NIC were analyzed, and the factors were determined by linear regression statistical analysis. RESULTS Overall 191 target population responded to the questionnaire, including 22 males (11.52%) and 169 females (88.48%), the age range was 21 to 28 years, the average age was 24.64 (SD 1.43). 53 persons without computer level certificate (27.75%), 138 persons with computer level certificate (72.25%), the total score of Self-Assessment Nursing Informatics Competency Scale was 68.65 (SD 10.47), the scores of each dimension were role of clinical information 10.12 (SD 2.17), basic computer knowledge and skills 26.64 (SD 4.96), application ability of computer skills 7.16 (SD 1.82), wireless equipment skills 8.02 (SD 2.04), nursing information attitude 16.73 (SD 3.25). In the analysis of influencing factors of NIC, “whether learned professional knowledge through the internet” is the influencing factor of NIC (P< .05). CONCLUSIONS The clinical nursing informatics (NC) of nurses was at a medium level, mainly influenced by “whether learned professional knowledge through the internet.” In the future regulation process, it is necessary to strengthen further the capacity training of information to improve their clinical information decision-making ability and better serve patients.

scholarly journals Epistemological Equation for Analysing Uncontrollable States in Complex Systems: Quantifying Cyber Risks from the Internet of Things

2021 ◽  
Author(s):  
Petar Radanliev ◽  
David De Roure ◽  
Pete Burnap ◽  
Omar Santos
Keyword(s):  
Risk Assessment ◽  
Internet Of Things ◽  
Empirical Analysis ◽  
Quantitative Risk Assessment ◽  
The Internet ◽  
Self Assessment ◽  
Target State ◽  
Epistemological Analysis ◽  
Cyber Risk ◽  
The Internet Of Things

AbstractThe Internet-of-Things (IoT) triggers data protection questions and new types of cyber risks. Cyber risk regulations for the IoT, however, are still in their infancy. This is concerning, because companies integrating IoT devices and services need to perform a self-assessment of its IoT cyber security posture. At present, there are no self-assessment methods for quantifying IoT cyber risk posture. It is considered that IoT represent a complex system with too many uncontrollable risk states for quantitative risk assessment. To enable quantitative risk assessment of uncontrollable risk states in complex and coupled IoT systems, a new epistemological equation is designed and tested though comparative and empirical analysis. The comparative analysis is conducted on national digital strategies, followed by an empirical analysis of cyber risk assessment approaches. The results from the analysis present the current and a target state for IoT systems, followed by a transformation roadmap, describing how IoT systems can achieve the target state with a new epistemological analysis model. The new epistemological analysis approach enables the assessment of uncontrollable risk states in complex IoT systems—which begin to resemble artificial intelligence—and can be used for a quantitative self-assessment of IoT cyber risk posture.

Phenomenon of the Internet Immersion: Definition and Measurement

2021 ◽  
pp. 107-125
Author(s):  
L.A. Regush ◽  
◽  
A.V. Orlova ◽  
E.V. Alekseeva ◽  
O.R. Veretina ◽  
...  
Keyword(s):  
Convergent Validity ◽  
High Reliability ◽  
Diagnostic Methods ◽  
Internet Usage ◽  
Actual State ◽  
Time Range ◽  
The Internet ◽  
Digital Competence ◽  
Self Assessment ◽  
Internet Environment

The purpose of the study was to justify the essence of the “Internet immersion” phenomenon and to create a standardized method for its measurement. A comparative analysis of approaches to human behavior on the Internet environment and existing diagnostic methods has revealed a significant variety of categories and definitions used. At the same time, there is no definition that: first, characterizes the degree and quality of user's Internet activity; second, is free from negative and clinical connotations; and, third, describes a wider time range of Internet usage than the actual state of immersion. The authors substantiate the possibility of studying the phenomenon of the Internet immersion through the category of disposition. It consists of the readiness to use technical means and informational resources of the Internet to solve problems in various types of activities and communication. The authors identify traditional components in the structure of the Internet immersion phenomenon. These are, first of all, a cognitive component, represented by digital competence self-assessment; then, an affective component, represented by motivation and emotional and value-based attitude towards the Internet; and a behavioral component, represented by the amount of digital consumption. Based on this definition, it was possible to construct a compact 9-block “Index of the Internet immersion” questionnaire. Its standardization was conducted on the sample of 712 adolescents, aged from 11 to 17. Using the factor analysis, the structure of the questionnaire was identified. The first factor includes questions that relate to the time spent on the Internet and signs of dependence on it. The second factor includes questions that reveal the activity component and emotional attitude to the Internet. The third factor includes questions about experience and self-assessment of digital competence. The advantage of the “Index of the Internet immersion” questionnaire is a fairly high reliability for internal consistency of scales throughout the questionnaire. We also confirmed the sufficient convergent validity of the “Internet environment immersion Index” method with the “Scale of Problematic Internet Usage” by A.A. Gerasimova, A.B. Kholmogorova (adapted version of Generalized Problematic Internet Use Scale (GPIUS) by S. Caplan) and the Internet Addiction Test (IAT, K. Young), modified by V. A. Loskutova. This indicates its validity as an independent tool that does not duplicate other tools for semantically similar phenomena measurement. In the conditions of forced self-isolation that have developed in our country, the method of the Internet immersion diagnostics as an adequate and theoretically justified tool will allow us to study changes in the emotional state and behavior of teenagers on the Internet.

402 The challenge of medical information on the internet: The experiences of Orphanet dedicated to the rare diseases and orphan drugs

1999 ◽  
Vol 3 (6) ◽  
pp. A56
Author(s):  
S. Aymé ◽  
D. Oziel ◽  
B. Urbero ◽  
E. Lecouturier ◽  
F. Reboul-Salze ◽  
...  
Keyword(s):  
Rare Diseases ◽  
Medical Information ◽  
Orphan Drugs ◽  
The Internet

scholarly journals UNDERSTANDING AND UTILIZING E-LEARNING IN LECTURERS OF MKWU UNIVERSITY OF RIAU

JURNAL RANDAI ◽  
2020 ◽  
Vol 1 (1) ◽  
pp. 34-39
Author(s):  
Supentri
Keyword(s):  
Descriptive Analysis ◽  
The Internet ◽  
E Learning

E-learning is a learning media that can help teachers or lecturers make it easier to communicate so learning can happen anytime and anywhere as long as it is connected to the internet. Lecturers in general compulsory courses almost every year will enter the semester to conduct training in the use of e-learning in the hope that all lecturers in mkwu can use the facilities provided and can also facilitate lecturers in the administration of assignments, grades and others. However, in the implementation of the training there are still some who consider e-learning not so important, so this research is to look at the understanding and use of e-learning in lecturers at Riau University in Riau. Data were collected using a questionnaire distributed to lecturers participating in the training and then analyzed using descriptive analysis and presented. Based on the results of research conducted it can be concluded that the understanding and use of e-learning in lecturers who understand and use 68% other than that 18% do not understand and also do not use e-learning, other than that 13% are still doubtful. Some things that make not using e-learning are inadequate facilities and infrastructure and besides the desire to take training seriously is also lacking

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