scholarly journals PROBLEMS OF PARENTS CARING FOR CHILDREN WITH DISABILITIES

2020 ◽  
Vol 4 ◽  
pp. 268
Author(s):  
Maryna Lekholetova ◽  
Tetiana Liakh ◽  
Nataliia Zaveryko
Keyword(s):  
Social Services ◽  
Structural Changes ◽  
Children With Disabilities ◽  
Medical Problems ◽  
Raising Children ◽  
Economic Problems ◽  
Access Problems ◽  
Educational Potential ◽  
Depth Interviews

The development of integrated social services for parents raising children with disabilities is one of the priorities of social policy in Ukraine. The purpose of this article is to identify the typical problems of parents raising children with disabilities. Based on the in-depth interviews conducted by parents raising children with disabilities in two regions of Ukraine (n=60), groups of typical problems they face (discrimination, medical problems, imperfection of regulatory support, information problems, access problems, problems of early diagnosis / early intervention, psychological problems, risk of institutionalization, financial and economic problems) and their analysis. In-depth interviews identified issues that could provide brief guidance on social work with families raising children with disabilities.The authors draw attention to the urgent and structural changes needed to improve the access of parents of children with disabilities to quality social services and to improve the quality of their social and pedagogical support, including enhancing the educational potential of such parents.  

scholarly journals ASSESSMENT OF THE NEEDS OF FAMILIES RAISING CHILDREN WITH DISABILITIES IN THE PRACTICE OF THE UKRAINIAN NON-GOVERNMENTAL ORGANIZATIONS

2021 ◽  
pp. 196-216
Author(s):  
Olha Shved
Keyword(s):  
Social Services ◽  
Children With Disabilities ◽  
Government Agencies ◽  
Raising Children ◽  
Governmental Organizations ◽  
Special Services ◽  
Non Governmental Organizations ◽  
Funding Mechanisms ◽  
Families With Children

Social services in Ukraine are still in the process of formation and development. It is necessary to significantly improve the quality of social services, modernize the funding mechanisms, and expand the range of possible providers of these services. Families raising children with disabilities need special services and attention not only from government agencies, but also from non-governmental organizations (NGOs), which are increasingly supporting them. The study was conducted in Ukraine and had several objectives: 1. To find out whether NGOs work with families with children with disabilities; 2. If so, do they assess the needs of families and children with disabilities; 3. What methods are best to use when assessing needs?

scholarly journals Childhood disability in Turkana, Kenya: Understanding how carers cope in a complex humanitarian setting

2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Maria Zuurmond ◽  
Velma Nyapera ◽  
Victoria Mwenda ◽  
James Kisia ◽  
Hilary Rono ◽  
...  
Keyword(s):  
Social Services ◽  
Children With Disabilities ◽  
Social Systems ◽  
Childhood Disability ◽  
Group Discussions ◽  
Related Stigma ◽  
Health Rehabilitation ◽  
Social Support Systems ◽  
The Impact ◽  
Depth Interviews

Background: Although the consequences of disability are magnified in humanitarian contexts, research into the difficulties of caring for children with a disability in such settings has received limited attention.Methods: Based on in-depth interviews with 31 families, key informants and focus group discussions in Turkana, Kenya, this article explores the lives of families caring for children with a range of impairments (hearing, vision, physical and intellectual) in a complex humanitarian context characterised by drought, flooding, armed conflict, poverty and historical marginalisation.Results: The challenging environmental and social conditions of Turkana magnified not only the impact of impairment on children, but also the burden of caregiving. The remoteness of Turkana, along with the paucity and fragmentation of health, rehabilitation and social services, posed major challenges and created opportunity costs for families. Disability-related stigma isolated mothers of children with disabilities, especially, increasing their burden of care and further limiting their access to services and humanitarian programmes. In a context where social systems are already stressed, the combination of these factors compounded the vulnerabilities faced by children with disabilities and their families.Conclusion: The needs of children with disabilities and their carers in Turkana are not being met by either community social support systems or humanitarian aid programmes. There is an urgent need to mainstream disability into Turkana services and programmes.

Psycho-correction work with families of children with disabilities

2017 ◽  
Author(s):  
Viktoriya Tkacheva
Keyword(s):  
Children With Disabilities ◽  
Educational Institutions ◽  
Raising Children ◽  
Teaching Manual ◽  
Quality Of Teaching ◽  
Methods And Techniques ◽  
Common Concept ◽  
Health Institutions ◽  
Psychological Assistance

In the educational-methodical manual deals with theoretical and conceptual frameworks, practical methods and techniques of psychological assistance to parents and other relatives of a child with disabilities. The quality of teaching materials presented United by a common concept three technologies of psychocorrectional work with families of children with disabilities: methods of psychological assistance to families raising children with disabilities V. Tkachova; technology differentiated approach in the psychological work with parents of children with disabilities, developed by E. V. Ustinova; technology "Mozart" a systemic approach to family therapy N. P. Bolotova. A teaching manual is addressed to psychologists, speech pathologists and other professionals working in the system, both General and special education, in social assistance centres for families and children, rehabilitation centres, health institutions which support the families raising children with disabilities. The book can be useful for teachers of preschool and school educational institutions, use of inclusive forms of education, and representatives of parent and of public associations.

scholarly journals Modern Market Social Services: the Experience of Regional Studies

2018 ◽  
pp. 99-108
Author(s):  
Nataliya Nikolenko ◽  
Yana Serova
Keyword(s):  
Social Services ◽  
Social Protection ◽  
Well Being ◽  
Non Profit ◽  
Government Organizations ◽  
Advantages And Disadvantages ◽  
Volgograd Region ◽  
The Social ◽  
Depth Interviews

The study investigates the changes taking place in the domestic market of social services expressed in the appearance of "new players" in the form of socially oriented non-profit organizations (SO NPO) within its field in addition to public institutions for social protection and social services of the population. The authors identify the advantages and disadvantages of SO NGO compared to government organizations and social services, describe the processes of shadow economy expansion to the social services market and formation of regional "quasi-markets". The empirical part of the article is based on the data of two studies conducted in the form of indepth interviews. First, with experts on "Practices of interaction and prospects of cooperation between NPO and government organizations of social services in the Volgograd region", N = 52 (27 representatives of the public sector, 25 representatives of NPO, January-March 2018). Then with recipients of social services from government organizations and clients of SO NPO on the theme "Availability and quality of paid and free social services provided in the Volgograd region for retiring aged women" N = 46, 60 years and older (21 people-clients of SO NPO, 25 people-recipients of social services. services, October 2017 – January 2018). The analysis of these in-depth interviews with experts allowed to draw the following conclusions. There is a duplication of functions of the organizations of public and non-public sectors providing social services to the population. The activities of modern SO NPO operating in the social services market contain innovative and commercial components. The expansion of the "platform" of the social services market does not yet lead to full competition between organizations, encouraging them to constantly improve the quality of services. The analysis of in-depth interviews with recipients of social services from government organizations and customers of SO NPO showed that the commercialization of activities of SO NPO does not make social services more accessible to those who are in need of them. There is the necessity of changes in the way social services are being provided in the Volgograd region as they do not meet the needs of women of retirement age, do not take into account their level of income and material well-being.

scholarly journals Quality of Life, Needs and Fears of Mothers of Children with Disabilities in Saudi Arabia during the COVID-19 Lockdown

2021 ◽  
Vol 18 (21) ◽  
pp. 11442
Author(s):  
Nisreen Al Awaji ◽  
Monira Aldhahi ◽  
Shahnaz Akil ◽  
Salwa Awad ◽  
Eman Mortada
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Children With Disabilities ◽  
Well Being ◽  
Cross Sectional Study ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Raising Children ◽  
The Social

Substantial changes in life dynamics resulting from the outbreak of the coronavirus disease 2019 (COVID-19) could have an impact on the quality of life (QoL) of mothers of children with and without disabilities. This study compared the quality of life (QoL) of mothers of children with disabilities (MCD) to the QoL of mothers of children without disabilities (CON) in Saudi Arabia during COVID-19 lockdown. It explored mothers’ concerns and the type of support they need during the quarantine. A comparative cross-sectional study was conducted during the lockdown. An online questionnaire was distributed to mothers raising children with and without disabilities in Saudi Arabia. A total of 340 mothers participated in the study by completing the survey: 93 MCD and 247 CON. The QoL of MCD and CON was assessed using the WHOQOL-BREF questionnaire. Furthermore, detailed information was provided by the mothers regarding their needs and concerns during the lockdown. The results of the study revealed that the overall QoL was significantly higher in the CON group, compared to the MCD group, during the COVID-19 lockdown. The social well-being and environmental well-being reported by MCD were significantly lower on the total scale of the WHOQOL-BREF than those reported by the CON group. The comparison between the two groups revealed significant differences in the support required by mothers during the COVID-19 pandemic: a higher percentage of MCD needed emotional and psychological support, especially from family members. The major concerns reported by MCD were the deterioration of their children’s medical conditions and the lack of medical supplies during the lockdown.

scholarly journals Integration and independence in the perspective of rural municipalities

2009 ◽  
Vol 55 (No. 12) ◽  
pp. 596-604 ◽  
Author(s):  
H. Hudečková ◽  
M. Pitterling
Keyword(s):  
Local Identity ◽  
The Czech Republic ◽  
Economic Problems ◽  
Empirical Survey ◽  
Cultural Terms ◽  
Lower Ability ◽  
Rural Municipalities ◽  
Depth Interviews

In order to develop the quality of life in small rural municipalities, their representation faces the thoughts about the perspective of these municipalities in economic terms (the capacity to finance long-term investments) as well as in the socio-cultural terms (the development of participation in public life embedded in the local identity). This article presents the results of the pilot empirical survey in one micro-region of the Czech Republic. The results of the in-depth interviews clearly indicate the preference of the investigated communities to choose the strategy of supporting their independence (which might result in the risk of lower ability to deal with economic problems) prior to the strategy to strengthen the economy of the community through merging the municipalities (and to risk the potential loss of local identity). The conclusions consider the possible forms of municipal cooperation reinforcing the capacity to address economic problems while preserving the autonomy of small rural municipalities. However, the low ability of the partnership cooperation of these municipalities is demonstrated.

scholarly journals SOCIAL REHABILITATION OF FAMILIES WITH CHILDREN WITH DISABILITIES THROUGH THE ORGANIZATION OF MUTUAL ASSISTANCE GROUPS

2021 ◽  
Vol 3 ◽  
pp. 219-230
Author(s):  
Svetlana Burenina ◽  
Svetlana Kalinina ◽  
Elena Petrash ◽  
Boris Borisov ◽  
Alexey Shpak
Keyword(s):  
Children And Adolescents ◽  
Social Services ◽  
Children With Disabilities ◽  
Social Adaptation ◽  
State Budget ◽  
Mutual Assistance ◽  
Raising Children ◽  
The Social ◽  
Pskov Region ◽  
Families With Children

The article tells about the experience of the state budget institution of social services of the Pskov region "Rehabilitation center for children and adolescents with disabilities" from Velikiye Luki in the rehabilitation of children and adolescents aged 0 to 18 years with disabilities in mental and physical development, ensuring their fullest and timely social adaptation to life in society, family, education and work through the organization of mutual assistance groups. The effectiveness of this form of work with a family raising a child with disabilities is shown by teaching parents to understand their children, identify their abilities and needs for their further development. These theoretical positions were confirmed by experimental work that took place in three stages, including the social project "All together" with an inclusive component, which allowed to develop the huge internal potential of families raising children with disabilities for their more effective rehabilitation. 

scholarly journals The Pandemic Social Services Market: New Practices and Technologies

2021 ◽  
pp. 110-123
Author(s):  
Yana Sitnikova ◽  
Nataliya Nikolenko
Keyword(s):  
Social Services ◽  
Social Protection ◽  
Sociological Research ◽  
Service Market ◽  
The Social ◽  
The Status ◽  
Depth Interviews ◽  
Quantitative And Qualitative Methods

This article analyzes the processes of development of the social service market, which is part of the social protection system. Through a comparative analysis of the Soviet and Russian models of social services, the authors conclude that the modern system, while partially retaining some characteristics of the Soviet system, is transforming and acquiring new specific features. Based on the generalization of the results of the authors' comprehensive sociological research using quantitative and qualitative methods (questionnaire survey, in-depth interviews, content analysis), the innovative practices of working with consumers (recipients) of social services, which social efficiency in the conditions of the COVID-19 pandemic was noted by respondents, used by NCOs operating in the social services market. Despite the complexity of objective circumstances faced by organizations, regional NCOs still managed to maintain the quality of social services provided in both online and offline formats at a level that meets the needs of recipients. The prospects for the development of SO NPOs are connected not only with the creation and implementation of innovative technologies and practices, but also depend on strengthening the personnel composition of employees through the development and subsequent implementation of proposals for protecting their health and improving professional competencies by creating conditions for training, advanced training and mastering new specialties. The article notes the important role of regional media in covering the activities of NGOs in the difficult period of the spread of coronavirus infection and the establishment of a forced regime of social isolation. An analysis of video materials broadcast on official channels of Volgograd television is given, which contributed to strengthening the status of NGOs as competitive providers of quality social services. It is predicted that the experience gained during the "pandemic" period will be used by NGOs in their day-to-day activities in the future.

scholarly journals Availability of social services for families with disabled children in the context of the welfare state

2021 ◽  
Vol 44 (2) ◽  
pp. 34-48
Author(s):  
Agota Giedrė Raišienė ◽  
Laura Gardziulevičienė
Keyword(s):  
Welfare State ◽  
Social Services ◽  
Social Inclusion ◽  
Children With Disabilities ◽  
Well Being ◽  
Disabled Children ◽  
The Social ◽  
The Disabled ◽  
The Welfare State

The phenomenon of the welfare state is characterized by complexity of indicators. To determine in which areas the country is closer to the welfare state, various areas of social policy are analysed. In this article, we set out to investigate one of them, i.e., the accessibility of social services for children with disabilities. The European Union ensures the basic preconditions for the well-being of children with disabilities and emphasizes the compatibility of health, social and educational services (European Commission, 2021). In addition, Member States are free to introduce specific measures for social inclusion (COM, 2021). The well-being of children with disabilities is inseparable from that of adults, usually the family in which the children live. Depending on the child’s disability, the family has to devote time to the child’s special needs, so opportunities to function in society, such as working and earning an income, become dependent on the social assistance received for the disabled child. Research shows that participation in labour market processes reduces the social exclusion of families with children with disabilities and improves quality of life indicators in general (Stefanidis & Strogilos 2020). However, analysis of good practice is more common, while information about the lack of services that parents face difficulties remains overboard. Thus, our research contributes to a better understanding of how families raising children with disabilities use state-provided social services and what solutions and measures are needed to improve the quality of life of children with disabilities and their relatives. The practical implications of our article are revealed through the possibility of more confidently shaping the decisions and measures of the welfare state.The article presents results of a survey of 68 families with disabled children. Our research was conducted in Druskininkai municipality which has typical infrastructure of social services for the disabled and their families in Lithuania.Our study has shown that social services in Lithuania poorly meet needs of families with disabled children. Though social inclusion is one of the most important features of the welfare state, the provision of social services to disabled and their families goes beyond the concept in Druskininkai municipality at least. Families have little information about social guarantees and support provided by the state and municipality. The families are limited to services reported by health care and education institutions. Moreover, the most significant problem hindering social integration of disabled and their families is a small portion of disabled children using services of day care centre. As a result, children suffer at risk of social exclusion while disabled children’s parents lack of opportunities to fully participate in the labour market.Based on the results of the study we state that increasing the availability of social services that meet the needs of families with disabled children is a necessary social policy solution, without which the development of a welfare state in Lithuania is hardly possible.

scholarly journals Challenges Caused by the COVID-19 Quarantine for Families Raising Children with Disabilities: Compatibility Between Working from Home and Childcare

2021 ◽  
Vol 17 (35) ◽  
pp. 22
Author(s):  
Laura Gardziuleviciene ◽  
Agota Giedre Raisiene
Keyword(s):  
Special Needs ◽  
Family Support ◽  
Social Services ◽  
Social Inclusion ◽  
Children With Disabilities ◽  
Phenomenological Research ◽  
Support Network ◽  
Public Authorities ◽  
Raising Children ◽  
The Public

Parents with children having special needs go through extremely difficult emotional, psychological experiences and physical fatigue due to unavailability of help and lack of access to social services. The COVID-19 pandemic has worsened the situation since the need for cohesion and the importance of social responsibility were not addressed well by the public authorities. The unavailability of help is believed to have plunged parents even further into exclusion. If before the pandemic, parents felt stigmatized, the situation after the COVID-19 pandemic became significantly worse. Thus, with the help of the phenomenological research, we aimed to reveal the challenges faced by families raising children with disabilities in combining aspects of work and childcare, by analyzing the attitudes and experiences of the respondents. The study is relevant for both public authorities and parents raising children with special needs in the context of developing social inclusion and family support network respectively.

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