Nothing about us without us: Canadian vaccine decision making must involve disabled people
Across Canada, national and provincial Covid-19 vaccine prioritization guidance and strategies have failed to appropriately include people with disabilities. Since the early goal of vaccination was to reduce severity, those at higher risk of severe disease if infected were meant to be prioritized early in vaccination campaigns, directly reducing their chance of death due to Covid-19. Older adults and some other higher-risk groups were therefore accorded high priority. However, younger disabled people were not prioritized for vaccines at levels commensurate with their risk of severe Covid-19 outcomes. Consequently, Canadian national policy recommendations have been incongruent with peer countries’ vaccine prioritization, scientific evidence, and priorities expressed by Canadians regarding how we should allocate Covid-19 vaccines. To avoid repeating these mistakes, current and future pandemic planning must include disabled people as full members of decision-making committees, in keeping with the longstanding demand of disabled people: “Nothing about us without us.” (1)