scholarly journals Discovery of hearing impairment by the family: seeing an idealized future collapse

2012 ◽  
Vol 25 (spe2) ◽  
pp. 82-88 ◽  
Author(s):  
Sheila de Souza Vieira ◽  
Maria Cecília Bevilacqua ◽  
Noeli Marchioro Liston Andrade Ferreira ◽  
Giselle Dupas

OBJECTIVE: To portray the family experience when the discovery of hearing impairment in their child. METHODS: Qualitative research with Symbolic Interactionism and Grounded Theory as theoretical and methodological frameworks. Data collection instrument: semi-structured interview. The study included nine families (32 participants). RESULTS: The theme, "Seeing an idealized future collapse", shows that for the family, discovered the possibility of having a child with hearing loss is a moment that involves many negative feelings. CONCLUSION: Discover the hearing loss has a meaning of the expected loss of the perfect child, frustrated expectations and uncertain future. The family has been inadequately approached and the diagnosis has been made late, which requires immediate changes to the practices of professionals.

2021 ◽  
Vol 13 (2) ◽  
Author(s):  
Nining Wuri Lestari ◽  
Setyawati Soeharto ◽  
Dwi Windarwati

Background: Caring for people with post-pasung (post seclusion and restraint of patient) mental disorders can provide special experience for families who act as caregivers. Objective: To explore family experiences in rehabilitating people with post-pasung mental disorders in Trenggalek Regency. Methods: This research is a qualitative research with an interpretive phenomenological approach. Data were obtained through in-depth interviews using semi-structured interview guidelines. Participants in this study were twelve in number who treated people with post-pasung mental disorders in Trenggalek Regency. Results: Analysis of data using IPA (Interpretative Phenomenological Analysis), found eight themes, namely having compassion for patients, having the responsibility of caring for patients, repaying the kindness of patients and others who have helped, having the hope that patients can recover, feel the need to supervise the independence of patients, realize the condition of mental patients, resigned to accept, thankful that the patient can improve and upset. Conclusion: Family is a determinant of the success of rehabilitation in people with post-pasung mental disorders. Family compassion and attention support the patient's recovery. The family hopes that the patient can recover and be independent in self-care, take medicine and work so that it does not depend on the family. This study produced eight themes and answered the research objectives.


Rev Rene ◽  
2015 ◽  
Vol 16 (4) ◽  
pp. 486 ◽  
Author(s):  
Caroline Vieira Mathias ◽  
Margrid Beuter ◽  
Nara Marilene Oliveira Girardon-Perlini

To report the experience of rural families when having a father/husband with prostate cancer illness. Methods: qualitative research, conducted at the residence of four rural families with nine subjects. A semi-structured interview was used, and thematic categories were established by the data analysis. Results: men with cancer were between 66 and 68 years old, knowing the diagnosis at least four years ago. Respondents family members were wives or children, aged between 30 and 69 years old. Families worked on agriculture and livestock. The nominated category A prostate cancer in our life is formed by the sub-categories: discovery of the diagnosis; family support; changes resulting from illness and difficulties faced during treatment. Conclusion: the rural family experience is full of constant division of tasks between the care for the father/husband and work activities, changes in marital life, sadness, distress and hopes about an uncertain future.


2013 ◽  
Vol 4 (1) ◽  
pp. 54-57
Author(s):  
Larissa Cinara Brunnquell Pires ◽  
Mara Ambrosina De Oliveira Vargas ◽  
Rosmari Wittmann Vieira ◽  
Flávia Regina Souza Ramos ◽  
Sílvia Ferrazzo ◽  
...  

Pesquisa qualitativa, cujos objetivos são analisar a relação entre equipe de enfermagem e familiar de pacientes internados num Núcleo de Cuidados Paliativos (NCP), na perspectiva dos familiares e identificar o entendimento destes sobre o acolhimento como uma das atividades desenvolvidas pela equipe de enfermagem. Dados coletados mediante entrevista semiestruturada com treze familiares de pacientes adultos internados no NCP e analisados por Análise Temática. Identificou-se a contribuição da equipe de enfermagem ao proporcionar qualidade às pessoas com doença terminal e minimizar o sofrimento vivenciado pelo familiar. Apoio, atenção e afeto são marcas definidoras da relação e do acolhimento da equipe.Descritores: Cuidados Paliativos, Família, Equipe de Enfermagem, Cuidado Terminal.Relation between the nursing team and family of people under palliative careA qualitative research, which aims to analyze the relation between the nursing team and family of inpatients being treated in a Palliative Care Center (NCP), in the perspective of their relatives and identify their understanding on the welcoming as one of the activities developed by the nursing team. The data were collected through semi-structured interview with thirteen relatives of adult inpatients being treaded at a NCP and analyzed by Theme Analysis. The contribution of the nursing team by providing quality to people with terminal disease and minimizing the suffering experienced by the family was identified. Support, care, and kindness are determinant factors in the welcoming by and relationship of the team.Descriptors: Palliative care, Family, Nursing Team, Terminal Care.Relación entre equipo de enfermería y familia de personas en cuidados paliativosInvestigación cualitativa, cuyos objetivos son los de analizar la relación entre el equipo de enfermería y familiar de pacientes internados en un Núcleo de Cuidados Paliativos (NCP), en la perspectiva de los familiares e identificar el entendimiento de éstos sobre el acogimiento como una de las actividades desarrolladas por el equipo de enfermería. Datos colectados mediante entrevista semiestructurada con trece familiares de pacientes adultos internados en el NCP y analizados por Análisis Temático. Se identificó la contribución del equipo de enfermería al proporcionar calidad a las personas con enfermedades terminales y minimizar el sufrimiento vivido por el familiar. Apoyo, atención y afecto son marcas definidoras de la relación y del acogimiento del equipo.Descriptores: Cuidados Paliativos, Familia, Equipo de Enfermería, Cuidado Terminal.


Author(s):  
José Júnior Bezerra da Silva ◽  
Magda Fernanda Lopes de Oliveira Andrade

O presente estudo teve como objetivo conhecer a percepção de trabalhadores do sistema socioeducativo sobre o adolescente em cumprimento da medida de internação, considerando que essa percepção influencia diretamente na maneira como a medida é executada. Trata-se de um estudo exploratório de campo, com abordagem qualitativa, que utilizou como instrumento para a coleta de dados uma entrevista semiestruturada, na qual os resultados foram tratados com a análise de conteúdo na modalidade temática. Como resultados foram elencadas três categorias temáticas: 1) Motivos que levam ao ato infracional e os responsáveis por esses adolescentes; 2) O trabalho nas medidas socioeducativas de internação; 3) Entre a vítima e o vilão: A percepção dos trabalhadores sobre a efetividade das medidas socioeducativas de internação. Os trabalhadores percebem o adolescente sob a ótica do estigma de infrator. Acredita-se que essa percepção, que destacou a família como a grande responsável pelo rompimento social do adolescente, influencia diretamente no curso do cumprimento da medida, inclusive na efetivação.  É necessário ampliar essas discussões sobre os trabalhadores que participam da execução da medida socioeducativa de internação, para contribuição e reflexão sobre o seu processo de trabalho e sua interferência no direcionamento de vidas. AbstractThe present study had as objective to know the perception of workers of the socioeducative system on the adolescent in fulfillment of the hospitalization measure considering that this perception directly influences in the way the measurement is executed. It is an exploratory field study, with a qualitative approach, which used as a data collection instrument a semi-structured interview, in which the results were treated with the content analysis in the thematic modality. As results were listed three thematic categories: 1) Motives that lead to the infraction and those responsible for these adolescents; 2) Work on socio-educational measures of hospitalization; 3) Between the victim and the villain: The workers' perception about the effectiveness of the socio-educational measures of hospitalization. The workers perceive the adolescent from the perspective of the stigma of the offender. It is believed that this perception, which highlighted the family as the major responsible for the social disruption of the adolescent, directly influences the course of compliance of the measure, including its effectiveness. It is necessary to broaden these discussions on the workers who participate in the implementation of the socio-educational measure of hospitalization, for contribution and reflection on their work process and their interference in directing lives.Key words: Perception; Adolescent; Justice; Occupational Therapy. ResumenEl presente estudio tuvo como objetivo conocer la percepción de trabajadores del sistema socioeducativo sobre el adolescente en cumplimiento de la medida de internación considerando que esa percepción influye directamente en la manera como la medida es ejecutada. Se trata de un estudio exploratorio de campo, con abordaje cualitativo, que utilizó como instrumento para la recolección de datos una entrevista semiestructurada, en la cual los resultados fueron tratados con el análisis de contenido en la modalidad temática. Como resultados se enumeraron tres categorías temáticas: 1) Motivos que llevan al acto infraccional y los responsables de esos adolescentes; 2) el trabajo en las medidas socioeducativas de internación; 3) Entre la víctima y el villano: La percepción de los trabajadores sobre la efectividad de las medidas socioeducativas de internación. Los trabajadores perciben al adolescente bajo la óptica del estigma de infractor. Se cree que esa percepción, que destacó a la familia como la gran responsable por el rompimiento social del adolescente, influye directamente en el curso del cumplimiento de la medida, incluso en la efectividad. Es necesario ampliar esas discusiones sobre los trabajadores que participan en la ejecución de la medida socioeducativa de internación, para contribuir y reflexionar sobre su proceso de trabajo y su interferencia en el direccionamiento de vidas.Palabras clave: Percepción; Adolescente; Justicia; Terapia Ocupacional. 


Author(s):  
Maria Aparecida Bonelli ◽  
Amanda Aparecida Borges ◽  
Renata Olzon Dionysio de Souza ◽  
Gabriela Van Der Zwaan Broekman Castro ◽  
Gabriel Brassi Silvestre de Oliveira ◽  
...  

Objective: to understand the experience of families in the care of children with myelomeningocele. Method: a qualitative research study, which adopted Symbolic Interactionism and Grounded Theory as its theoretical and methodological framework, and the semi-structured interview as a data collection instrument. Twenty-eight participants from thirteen families living in a municipality in the inland of São Paulo took part in the study. Results: the family tirelessly seeks better health and life conditions for the child with myelomeningocele; aiming at the child’s autonomy, it is mobilized to the necessary treatments, to learn the care, to adapt the routine, as well as to supply for all the child’s needs so that it reaches potential development, looking for a less dependent future with inclusion and social ascension. Conclusion: family nursing shows potential support in the face of myelomeningocele, due to its ability to apprehend the family system, evaluate it and enable intervention proposals in the care process. In this study, rehabilitation nursing was also emphasized, since it goes together with the child and the family who experience myelomeningocele.


Jurnal NERS ◽  
2020 ◽  
Vol 14 (3) ◽  
pp. 205
Author(s):  
Ratna Puji Priyanti ◽  
Anja Hesnia Kholis ◽  
Asri Asri ◽  
Rifa'i Rifa'i ◽  
Supriliyah Praningsih

Discusiion: The risk of cardiovascular disease has shifted. Cardiovascular disease initially only affected certain age groups but not with the current incidence of cardiovascular disease. This makes the community more susceptible to cardiovascular disease attacks. An attack of cardiovascular disease, in general, is only considered to be a cursory attack. The patients with high-risk factors must be supported by the ability of families to recognize and perform first aid in cardiovascular disease attacks. The purpose of this study was to understand the family's experience in dealing with emergency heart disease at home.Method: This study used qualitative research with a case study approach;  2 participants with family members who face emergency heart disease were selected. The data collection used semi-structured interview techniques using observation and field notes. The data analysis used Creswell's qualitative data analysis method.Result: The results of the study found 4 themes related to the family experience in dealing with emergency heart disease at home. The themes were knowledge, past experience, values and beliefs.Conclusion: The conclusion of the study is that the family experience when dealing with emergency heart disease is strongly influenced by the knowledge that forms a value and belief which then influences the attitudes involved in decision making.


2019 ◽  
Vol 13 (1) ◽  
pp. 23
Author(s):  
Jonas Sâmi Albuquerque Oliveira ◽  
Lucas Batista Batista Ferreira ◽  
Rafaella Guilherme Gonçalves ◽  
Tatiana Maria Nóbrega Elias ◽  
Soraya Maria de Medeiros ◽  
...  

ABSTRACTObjective: to describe the strategies adopted by nurses in order to provide the families of hospitalized children and adolescents with care. Method: this is a qualitative study, guided by thematic oral history, conducted with 12 nurses at a pediatric hospital. A semi-structured interview script was used to collect data. Data was organized and codified by using the software Atlas.ti 7.0 (Qualitative Research and Solutions), obtaining the categories: The family from nurses’ viewpoint: conceptual perspective; and Nurses providing the families of hospitalized children with care. Results: it was revealed that nurses turn the establishment of bonds, communication, health education, and search for support from the multiprofessional team, as well as a qualified listening and a calm professional attitude, into strategies to provide the families of hospitalized children and adolescents with care. Conclusion: the strategies used by nurses take place in the subjective dimension, and, in the essence, they are of great importance, by contributing to a better coping with the hard experience that hospitalization represents for the binomial family/child; these nurses also have a closer relationship with both the family and the child, getting to know their needs better. Descriptors: Nursing Care; Family; Child, Hospitalized; Adolescent; Hospitalization; Pediatric Nursing.RESUMO Objetivo: descrever as estratégias adotadas pelos enfermeiros para o cuidado de famílias de crianças e adolescentes hospitalizados. Método: trata-se de um estudo qualitativo, norteado pela história oral temática, realizado com 12 enfermeiros em um hospital pediátrico. Utilizou-se um roteiro de entrevista semiestruturado para a coleta de dados. Organizaram-se e codificaram-se os dados por meio do programa computacional Atlas.ti 7.0 (Qualitative Research and Solutions), obtendo-se as categorias: A família na visão de enfermeiros: perspectiva conceitual; e Os enfermeiros cuidando de famílias de crianças hospitalizadas. Resultados: revelou-se que os enfermeiros fazem do estabelecimento do vínculo, da comunicação, da educação em saúde e da busca por suporte da equipe multiprofissional, bem como da escuta qualificada e da postura profissional tranquila, estratégias para o cuidado de famílias de crianças e adolescentes hospitalizados. Conclusão: dão-se na dimensão subjetiva as estratégias utilizadas pelos enfermeiros, que, em sua essência, têm grande relevância, pois contribuem com um melhor enfrentamento da experiência difícil que a hospitalização representa para o binômio família/criança; esses enfermeiros também têm uma relação mais próxima tanto com a família como com a criança, conhecendo melhor suas necessidades. Descritores: Cuidado de Enfermagem; Família; Criança Hospitalizada; Adolescente; Hospitalização; Enfermagem Pediátrica.RESUMENObjetivo: describir las estrategias adoptadas por los enfermeros para brindar atención a familias de niños y adolescentes hospitalizados. Método: este es un estudio cualitativo, guiado por la historia oral temática, realizado con 12 enfermeros en un hospital pediátrico. Se utilizó un guión de entrevista semi-estructurado para recoger datos. Los datos se organizaron y codificaron utilizando el software Atlas.ti 7.0 (Qualitative Research and Solutions), obteniendo las categorías: La familia desde el punto de vista de enfermeros: perspectiva conceptual; y Los enfermeros que brindan atención a familias de niños hospitalizados. Resultados: se reveló que los enfermeros convierten el establecimiento del vínculo, de la comunicación, la educación para salud y la búsqueda de soporte del equipo multiprofesional, así como de la escucha calificada y la actitud profesional tranquila, en estrategias para brindar atención a familias de niños y adolescentes hospitalizados. Conclusión: las estrategias utilizadas por los enfermeros tienen lugar en la dimensión subjetiva y, en esencia, son de gran importancia, contribuyendo a hacer frente a la experiencia difícil que representa la hospitalización para el binomio familia/niño; eses enfermeros también tienen una relación más cercana tanto con la familia como con el niño, conociendo mejor sus necesidades. Descriptores: Atención de Enfermería; Familia; Niño Hospitalizado; Adolescente; Hospitalización; Enfermería Pediátrica.


Rev Rene ◽  
2015 ◽  
Vol 16 (3) ◽  
Author(s):  
Mayanne Santana Nóbrega de Figueiredo ◽  
Edilma Gomes Rocha Cavalcante ◽  
Célida Juliana de Oliveira ◽  
Maria De Fátima Vasques Monteiro ◽  
Glauberto Da Silva Quirino ◽  
...  

Objective: to investigate the perception of nurses of the Family Health Strategy on the factors that influence adhesion totreatment of sexual partners of pregnant women with syphilis. Methods: it is a qualitative research, made with 10 nurses.To collect data, a semi-structured interview was used. The data were submitted to thematic analysis. Results: the followingcategories were identified: the approach of the nurses to partners of pregnant women with syphilis; barriers that influenceon the adhesion to the treatment; strategies and actions of adhesion of the partners in the treatment; perception of the nurseconcerning the responsibility of assistance and effectiveness of the treatment. Conclusion: it was identified that nurses havea wide perception of aspects relating to adhesion to the treatment, but need better scientific and practical basis to performeffectively activities on the management of sexual partners with syphilis.


Author(s):  
Maria Clara Ribeiro ◽  
Liliana Santos ◽  
Diana Martins

Entrepreneurship is an increasingly studied international phenomenon, often being understood as a way of creating jobs and boosting economic growth, development, and innovation. This chapter aims to take on the problem related to gender and entrepreneurship in the Portuguese society. The goal is to explain the concept of entrepreneur, behavioral, and social differences between the masculine and the feminine gender as entrepreneurs and identify Portuguese female entrepreneurs. A qualitative, multiple case studies methodology is applied to the sample of eight Portuguese female entrepreneurs, the data collection instrument being the semi-structured interview. Regarding the obtained results, it can be stated that the majority of the interviewees has entrepreneurs in the family, the father being the most mentioned figure as booster of entrepreneur activity. The wish for personal realization and independence are the main factors that motivated self-employment. No entrepreneur felt any discrimination or gender inequality as a female entrepreneur.


2021 ◽  
Vol 6 (12) ◽  
pp. 161-189
Author(s):  
Firdevs SAVİ-ÇAKAR ◽  
Kıvanç UZUN

The purpose of this research is to evaluate the parents' perspective of the reflections of the Covid-19 pandemic on the lives of adolescents and their parents. The phenomenology model included in the research, qualitative research was used. The study was carried out in the provinces of 50 parents participating in the “We Are A Team Project” at Burdur Mehmet Akif Ersoy University. A semi-structured interview form was prepared from open-ended questions. The impact of the Covid-19 pandemic on parents, its effect on adolescents, its effect on the family, the need for support and expectations are collected under five general themes. The general theme of the Covid-19 pandemic effect on parents; The changes in the lives of the parents were examined under three sub-themes: parents' feelings and thoughts, and things that are beneficial for parents. The general theme of its effect on adolescents; Problems experienced by adolescents with pandemics, feelings and thoughts of adolescents, things that adolescents have the most difficulties and things that are beneficial for adolescents are examined under four sub-themes. The general theme of the effect on the family; The effects of an acquaintance with Covid-19 disease on the family, problems as a family and positive changes in the family were examined under four sub-themes. The theme of the parent's need for support towards himself or his family; During the pandemic process, it was examined under two sub-themes: whether any support was received and feeling the need for support. Based on the findings, it turned out that this process has negative effects on parents and adolescents in general, as well as some positive effects.


Sign in / Sign up

Export Citation Format

Share Document