scholarly journals Significados de ser portadoras de hemofilia

2018 ◽  
Vol 15 (1) ◽  
pp. 18 ◽  
Author(s):  
Yuri Andrea Arango-Bernal

Objetivo: analizar los significados que construyen las madres de personas en condición de hemofilia, sobre ser portadoras de la enfermedad. Materiales y Métodos: Estudio cualitativo con enfoque del interaccionismo simbólico que, a través de una etnografía particularista y el uso de entrevistas semiestructuradas, observaciones y revisión documental, rescató el punto de vista de 17 madres pertenecientes a la Liga Antioqueña de Hemofílicos que participaron de manera voluntaria y residen en diferentes municipios del departamento de Antioquia. Resultados: Las participantes se reconocen a sí mismas como seres potenciales, es decir, no sólo como trasmisoras o cuidadoras de la enfermedad de sus hijos, sino como sujetos cognoscentes de su realidad dispuestas a reflexionar sobre sus aprendizajes e incorporarlos a favor de la relación consigo mismas y con los demás. Los significados más relevantes son: empezar a vivir con hemofilia, asumir la enfermedad, la familia, el cuidado y la crianza, la relación con los servicios de salud, caminando con algo que no se puede desprender y darse cuenta. Conclusiones: La salud colectiva es la posibilidad de tener un acercamiento más comprensivo al proceso salud – enfermedad – atención de los colectivos humanos, tomando en cuenta las condiciones económicas, sociales y culturales en las que estos se inscriben. La pregunta por los significados de estas madres develó el tejido de lo individual y lo colectivo, como un asunto que trasciende el plano biológico de la enfermedad y da cuenta de la construcción social en la que confluyen prácticas, saberes, imaginarios y sentimientos.Palabras Clave: Cuidadores, enfermedad crónica, hemofilia A, madresSignifi cance of being a hemophilia carrierAbstractObjective: Analyzing the meanings that mothers of people with hemophilia, build about being carriers of the disease. Materials and methods: Study based on the qualitative method supported by the approach of symbolic interaction, which through a particularistic ethnography, and the use of semi-structured interviews, observations and document review, rescued the point of view of 17 mothers belonging to the Liga Antioqueña de Hemofílicos. They participated voluntarily and reside in different municipalities of Antioquia. Results: The participants recognize themselves as potential beings, that is, not only as disseminators or carers of the illness of their children, but as cognocentes subject of their reality willing to reflect on their learning and incorporate them in favor of the relationship with herself and others. The most important meanings are: start living with hemophilia, assuming the disease, the family, the care and upbringing, relationships with health services, walking with something that can not be detached and realize. Conclusions: Collective health is the ability to have a more comprehensive approach to process health - disease - care of human groups, taking into account the economic, social and cultural conditions in which they are registered. The question of the meaning of these mothers, unveiled the tissue of the individual and the collective, as a matter that transcends the biological level of the disease and accounts for the social construction that blends practices, knowledge, imaginary and feelings.Key Words: Hemophilia A, chronic disease, mothers, caregivers. Significado de ser portadora de hemofiliaResumo                                   Objetivo: Analisar os significados construídos pelas mães de pessoas com hemofilia, sobre ser portadores da doença. Materiais e Métodos: Estudo qualitativo com foco no interacionismo simbólico, que, através de uma etnografia individualista e o uso de entrevistas semi-estruturadas, observações e revisão documental, resgatou o ponto de vista de 17 mães pertencentes à Liga Antioquia de Hemófilos que participaram voluntariamente e residem em diferentes municípios do departamento de Antioquia. Resultados: Os participantes se reconhecem como seres potenciais, ou seja, não apenas como transmissores ou cuidadores da doença de seus filhos, mas como sujeitos cognitivos de sua realidade que estão dispostos a refletir sobre sua aprendizagem e a incorporá-los em favor do relacionamento com eles mesmos e com os outros. Os significados mais relevantes são: começar a viver com hemofilia, assumir a doença, família, cuidados e educação, relacionar-se com os serviços de saúde, caminhar com algo que você não pode separar e perceber. Conclusões: A saúde coletiva é a possibilidade de ter uma abordagem mais abrangente para o processo saúde-doença-cuidado de grupos humanos, levando em consideração as condições econômicas, sociais e culturais nas quais estão registradas. A questão dos significados dessas mães revela o tecido do indivíduo e o coletivo como um problema que transcende o plano biológico da doença e explica a construção social em que as práticas, o conhecimento, o imaginário e os sentimentos convergem.Palavras-Chave: Cuidadores, doenças crônicas, hemofilia A, mães  

Author(s):  
Abdelmajid Nayif Alawneh

    The research aims to study the impact of unemployment on the social conditions in the Palestinian society from the point of view of the unemployed youth, especially in the current time period (2019), the researcher used the descriptive analytical method, and the research community consists of young people in the governorate of Ramallah. The researcher used the questionnaire tool, and the data were analyzed by the analysis program (SPSS). It was found that the majority of youth are unemployed, they are middle age, single and large families, urban residents, people with specialties and low income. As for the results of the research, there was an increase in the impact of the forms of unemployment on the social conditions of the individual, family and society and their outlook towards the future, came the highest degree on the social conditions of the individual (6. 90%) and then the social conditions of the family (3. 83%), Followed by the societal conditions to reach the value (78%), came the lowest values ​​for the outlook for the future, which amounted to (67%). Some of the features of the impact of unemployment, including the tension, anxiety and frustration of the young group. As for the nature of the relationship between the variables of the study, there was a statistically significant relationship between the combined unemployment and the low income, between the apparent, persuasive and compulsory unemployment, and the individual, family and societal situations and the outlook for them. At the end of the research a number of recommendations were made, most notably the need to balance the types of education and activate the social and cultural role of the family.  


Author(s):  
Graziele Aline Zonta ◽  
Andréa Vieira Zanella

The aim of this study was to investigate the meanings of creation and the possibilities of authorship for students from two public universities. Reading and writing workshops with students, which were recorded via audio recordings and fieldnotes constituted the field of study. The analyses were based on the theoretical perspectives of Bakhtin and Vygotski and focused, from the students’ point of view, on the social places institutionally occupied by professors and students and the meanings about the academic practices and their consequences for the possibilities of authorship and creation. The results indicate places of inequality in the relationship between peers from public and private education, the individual responsibilization of the students for their trajectories within the university and the signification of academic authorship as responsive to the productivist logic guided by the commodification of scientific production.


2021 ◽  
pp. 57-60
Author(s):  
И.И. Пацакула ◽  
Т.В. Белинская

Семья рассматривается как часть социальной среды, институт психологической поддержки ребенка, осуществляющий воссоздание определенного образа жизни, образа мыслей и отношений. Исследование посвящено изучению связи между индивидуально-психологическими особенностями личности матерей и стилем семейного воспитания. Результаты описывают стилевые особенности применительно к конкретным индивидуально-психологическим особенностям. The family is considered as a part of the social environment, an institution of psychological support for the child, which recreates a certain way of life, way of thinking and relationships. The study is devoted to the study of the relationship between the individual psychological characteristics of the personality of mothers and the style of family education. The results describe stylistic features in relation to specific individual psychological characteristics


2019 ◽  
Vol 11 (11) ◽  
pp. 31-43
Author(s):  
Fredy Andrés Cruz - Vega ◽  
Luz Eliana Figueroa - Granados

The research makes it possible to recognize the judgments of the users who are enrolled in the zero to always family modality and, in turn, establish the relationship they give to the program in the training of their children. The use of qualitative research for this proposal contributes or it establishes the relationship of describing and giving points of view to problems of the social educational and experiential context, the primary objective was to determine the degree of use by users of the program from zero to always family modality, in the municipality of Pamplona. It can be said that the application of this research contributes in part to diagnosing from a personal point of view the impact generated by the program in the training of minors, evidencing in it the theoretical, political and real positions in order to make them aware of the importance of training of children. The instruments used for families in certain rural areas who are the objects of study were semi-structured interviews; validated by experts from the area, they managed to produce key information for the analysis and triangulation. Thanks to the analysis units and the categories established in the interview, it was possible to focus and provide solutions to the objectives set, demonstrating the perception that the beneficiaries of the program of zero They always have in relation to the operation in rural areas of Pamplona. With the information obtained it is clear to establish the conformity of the operation of the program in terms of the role of care for families, the training of minors and the integration of society is thus how the show is getting on the right tide.


2019 ◽  
Author(s):  
Aji Septiaji

Literature as one of the works that involve the text as a medium in delivering form and meanings. It has a role that affects other works or readers’ point of view. In the process of creating a work, an author is inseparable from his involvement with other texts which have existed before that surround them. It shows the influence of other texts that included into the result of literary text. Thus, there is no original text belongstoanauthor.Themethodusedinthisstudyisdescriptivequalitative.Thedata were analyzed by reading and identifying which determined through the relationship between the structures and the social problems of the story. The result indicates that intertextuality is established through the social conflict relationship. The stories give a portrait on how social situation and discrimination cultural conditions become a reflection of society in the era of globalization and information.


2003 ◽  
Vol 1 (1) ◽  
Author(s):  
Daniel Lloret Irles

Los efectos del consumo excesivo de alcohol sobre el organismo, son ampliamente conocidos, y son, posiblemente, el motivo desencadenante de que las personas con un problema de adicción a este tóxico comiencen un tratamiento de desintoxicación y deshabituación, aunque el problema real de esta adicción, como en muchas otras, sea probablemente las consecuencias familiares, sociales y laborales, que en la mayor parte de las ocasiones resultan devastadoras En este sentido, la familia, como contexto socializador primario del individuo, es el elemento central, más importante tanto a nivel de intervención, como preventivo, en relación al consumo de drogas. Está comprobado que el sistema familia desempeña un papel importante en el desencadenamiento de conductas de consumo, de abuso, y de adicción, (Jacob,T. Johnson, S. 1999) De manera que dejando a un lado los factores genéticos, se puede afirmar que los procesos de socialización familiar destacan su importancia al ser la base de predisponentes tales como las actitudes, la personalidad, el autoconcepto, los valores, y en última instancia las habilidades de comunicación. La relación entre familia y consumo de alcohol no se limita a la causalidad ya establecida, hay otra vertiente no menos importante, que se refiere a la trascendencia de esta patología en las interacciones familiares, y a las dinámicas de relación disfuncionales que se crean debido a este problema. AbstractThe effects that the abusive consumption of alcohol cause within the human organism are well known and are probably good reasons to begin a detoxification treatment for people who suffer a serious addiction to this highly toxic drug, although the real problem about this sort of addiction, as in the case of many others, is probably the negative consequences that it may cause for the family, the social and work settings, which, in most cases, prove to be devastating. In this respect, the family, as the prime socializing element for the individual, is the most important influence at the levels of both intervention and prevention of drug abuse. It has been proven that the family’s attitude plays an important role in the promotion of drug consumption, abuse and addiction (Jacob,T. Johnson, S. 1999). Apart from the genetic factors, however, we can affirm that the family’s social processes highlight their importance because they are the base of the underlying factors in this problem, such as their attitudes, their personalities, their self-esteem, their personal values and finally, their communication skills. The relationship between the family and alcohol consumption is not limited to the already established elements. There is another important angle to the problem. It is the far-reaching effects of this pathologic condition on the way the family interacts and on the dynamics of the malfunctioning relationships that this problem causes. 


2021 ◽  
Vol 10 (2) ◽  
pp. 97
Author(s):  
Maria Ulfah Kurnia Dewi

The phenomenon of bullying is not only seen from the point of view of the individual perpetrators and victims, but it focuses more on the social aspects behind the phenomenon. The formation and development of youth classes are a means to provide knowledge for adolescents about health. The youth class program must be carried out continuously in schools. The National Survey of Child and Adolescent Life Experiences (SNPHAR) by the Ministry of Women's Empowerment and Child Protection (KPPPA), 2018 revealed that 3 out of 4 adolescent children who had experienced one or more types of violence reported that the perpetrators of violence were friends or their peers. The purpose of this study was to determine the relationship between adolescent peer group education and adolescent knowledge about bullying. quantitative research with analytic survey design with the population is teenagers at the Ning Amriyah Soepardo Kendal Orphanage. The sample used is 30 respondents using total sampling. The research instrument used attendance data and questionnaires. The variables studied were adolescent peer group education and adolescent knowledge about bullying. The results showed that there was a relationship between adolescent peer group education and the level of adolescent knowledge about bullying (pvalue < α).


2021 ◽  
pp. 105-109
Author(s):  
A.V. Grishchuk ◽  

The article describes the meaning of the philosophical category of “values”, its integration with culture, the role and significance of cultural values, the formation of a culture of being, examples of interpretations of philosophers of the 19th and 20th centuries are given. The categories of objects that are cultural values are highlighted. Also, the article discusses in detail the axiological approaches in philosophy and highlights several facts that deserve special attention. While working with this article, we come to the conclusion that the “Axiological Turn” describes in great detail the relationship of people, both just one-on-one with each other, and with a group, with society. The key moment in this event is the development of such forms of thinking inherent in culture and man, which will help maintain good relationships with the environment, with nature, with society. The “axiological turn” helps people to understand the importance of feeling a part of society and how important the development of language is as a means of intercultural communication. “Axiological turn” describes culture as an integral composite phenomenon, consisting of independent elements, but related to each other. All these elements are characteristic of any group of people and are one of the main sources of communication, self-identification and also the integration of the individual into the social system.


2016 ◽  
Vol 24 (2) ◽  
pp. 137-147
Author(s):  
Samuel Mateus

The idea of public experience is often invoked in different social and academic contexts. However, it seldom deserved a reflection that specifically sought to deepen its meaning from the point of view of social life. In this article we contribute to the understanding of the uniqueness of the public form of experience. We believe that one of the best ways through which we can observe the public experience is by the objectification, performance and dramatization of the culture, i.e., the “expression of lived experiences”. There is, in publicity, the possibility of simultaneous allocation of individual and collective experiences, and it is in this sense that we can see how culture influences the shaping of experience itself. Public experience is characterized by the weaving and intertwining of singular experiences that are pluralized and plural lived experiences that are singularized, in a process where individual and society interpenetrate. The relationship between experience and publicity arises from this symbolic communion contained in the systems of thought and action of societies. The decisive role of the principle of publicity to experience consists, according with the hypothesis we wish to put forward, in making available and communicating the social world of symbolic (cultural) activity. Public experience is, then, envisaged as the experience of a common world where both singular and plural definitions of the individual (taken as society) converge through lived experiences and, particularly, through their expression, which can take different symbolic forms.


2022 ◽  
Vol 12 ◽  
Author(s):  
Lida Hosseini ◽  
Hamid Sharif Nia ◽  
Mansoureh Ashghali Farahani

Objective: This study was designed to describe the experiences of family Caregivers' hardiness in caring for Alzheimer's Patients.Methods: The deductive content analysis method was performed between April 2020 and February 2021 in one of the teaching hospitals in Iran. Fourteen family caregivers of Alzheimer's patients were selected using purposive and snowballing sampling and the data were collected by semi-structured interviews. After that, data were analyzed using Elo and Kingas steps.Results: The results of this study showed that based on the experiences of family caregivers, the family caregivers' hardiness in caring for Alzheimer's patients is a feature of cognitive ability to deal with stressful care situations and consists of five dimensions of commitment, control, challenge, communication and culture with 22 generic categories that they were nested into this five dimension.Conclusion: Family caregivers' hardiness is a trait related to the individual and environmental factors, and the prevailing social and cultural conditions affect the individual's perception and experience of hardship and threats, as well as his/her understanding of protective factors and how to use them. Therefore, hardiness should not be interpreted as a simple approach regardless of culture.


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