scholarly journals THE ‘SEARCH-FOR METHOD’: EXAMINING INSTANCES OF SUPPORT IN FACEBOOK GROUPS FOR DONOR-CONCEIVED PEOPLE

2020 ◽  
Author(s):  
Giselle Newton
Keyword(s):  
Social Support ◽  
Social Media ◽  
Sensitive Information ◽  
Structured Interviews ◽  
Supportive Relationships ◽  
Information Seek ◽  
Health And Wellbeing ◽  
Access Information ◽  
Online Group ◽  
Over Time

Facebook groups represent an important resource for donor-conceived people to access information, seek advice and share their experiences with their peers. Limited research has considered how donor-conceived people create supportive relationships with peers through social media or how this form of social support contributes to donor-conceived people’s health and wellbeing. This work in progress outlines the ‘search-for method’, a practical user-led tool for discussing instances of participation in Facebook groups. The ‘search-for method’ involves inviting participants to search for their name in the search bar of a Facebook group, thereby retrieving data of all instances they have posted in the group. This paper reports on initial findings from applying the ‘search-for method’ to semi-structured interviews with administrators and members (N=30) of Facebook groups for donor-conceived people from across Australia. The ‘search-for method’ enabled the participant and researcher, as co-analysts, to track and examine specific instances of participation and interaction in the group. By scrolling through content on their own device, participants could decide how to frame their stories of support and whether to disclose sensitive information or omit experiences they did not wish to discuss. Broadly, this approach illuminated how individual and collective donor-conceived identities emerged and evolved with and through online group platforms. In doing so, it provided a framework for understanding sociality between donor-conceived peers longitudinally. This paper contributes to understandings of how digital affinities and peer intimacies develop in Facebook groups over time.

Social support in the process of household reorganization after divorce

2020 ◽  
Vol 37 (6) ◽  
pp. 1927-1944 ◽  
Author(s):  
Dries Van Gasse ◽  
Dimitri Mortelmans
Keyword(s):  
Social Support ◽  
Academic Research ◽  
Single Parents ◽  
Dynamic State ◽  
Structured Interviews ◽  
Theory Analysis ◽  
The World ◽  
Dynamic Perspective ◽  
Changes Over Time ◽  
Over Time

Social support has been shown to be important in the world of single parents. As for divorce, social support is mostly studied in a static way in academic research. Divorcing and/or separating people are in a dynamic state of a changing need for social support. This need changes over time within their process of becoming a single parent. In this article, we propose a more dynamic perspective on social support in the process of household reorganization after divorce. We argue that single parents move on after divorce and work toward a new conciliation of their responsibilities at home and at the labor market, using their social network. This resulted from a grounded theory analysis, conducted using 30 unstructured interviews that were then compared within an elaborative population of an additional 244 semi-structured interviews in order to develop a six-phase model of family reorganization after divorce.

scholarly journals The Information Behavior of Mothers: Instinct as Information

2020 ◽  
Vol 5 (1) ◽  
pp. 67-79
Author(s):  
Katherine Santangeli
Keyword(s):  
Social Media ◽  
Information Seeking ◽  
General Information ◽  
Information Resources ◽  
Structured Interviews ◽  
Open Spaces ◽  
Research Project ◽  
Starting Point ◽  
Maternal Instinct ◽  
Access Information

Previous research on the information-seeking behaviour of parents is extremely narrow in scope, focusing on parents whose children have medical or psychological concerns. This research hopes to share the information-seeking behaviours of a broader population, parents of adolescents (children between 10-19 years old). Using the Information Horizon Method (Sonnenwald 1999), this research project incorporates semi-structured interviews with three mothers who currently have two adolescent children each.  The interviews contained neutral questions regarding information resources used by parents when determining general information regarding their children’s lives. The findings show that there is a great preference for interpersonal resources, with the most attended to and preferred ones being the resources inside the home, which include spouse, the child, or the child’s sibling. It is only if they are not satisfied with the information gathered from those resources that the parents would go outside the home, at which point the resources are chosen based on the situation. Certain resources that parents are attempting to have in their information horizon are social media and internet use. Parents use different techniques to access information on their children’s social media accounts or look at friends’ private profiles. They also incorporate techniques with computers in general, such as allowing them only in open spaces, where parents are able to quickly glance at screens.  Lastly, all parents depicted an indescribable embodied knowledge that concerned the state of their children. This intuition was the starting point of all information-seeking processes depicted in this research project. They called this intuition maternal instinct.  

scholarly journals DUKUNGAN SOSIAL GERAKAN UNTUK KESEJAHTERAAN TUNARUNGU INDONESIA (GERKATIN) TERHADAP PENYANDANG TULI

2020 ◽  
Vol 8 (1) ◽  
pp. 60-68
Author(s):  
Maulidina Sekar Jannati
Keyword(s):  
Social Support ◽  
Qualitative Research ◽  
Social Media ◽  
Emotional Support ◽  
Research Method ◽  
Instrumental Support ◽  
Sign Language Interpreters ◽  
Deaf Person ◽  
Access Information ◽  
Negative Impacts

Abstract. A person with a deaf person is someone who has a disorder or damage to the ear organs. They prefer to be called Deaf (Tuli) than Deaf (Tunarungu). As a language used daily, Deaf friends get accessibility in fulfilling their rights and support from un-deaf friends and deaf friends. In this study, the authors used a qualitative research method with interviews, documentation studies and observations to study and describe the forms of social support provided by the Movement for Welfare Deaf Indonesia (GERKATIN) to Deaf friends and also examine the influence of Deaf friends who have joined this organization. The results showed that GERKATIN’s social support included: (1) social support, namely in the aspect of informative support such as the presence of Sign Language Interpreters (JBI), and social media that helped Deaf friends access information; (2) emotional support, such as sharing among members; (3) instrumental support, such as BISINDO learning places as socialization access to the community; (4) award support, such as JBI on television or in formal events; and (5) group support, such as sharing feelings among Deaf friends. Direct influences such as intensive support and communication provided by fellow members, indirect influences, namely the existence of a place to share stories, and interactive influences such as GERKATIN have an influence on Deaf friends to make this organization a place for their welfare such as avoiding discrimination that has many negative impacts. Abstrak. Orang dengan penyandang tuli adalah seseorang yang mengalami gangguan atau kerusakan pada organ-organ telinganya. Mereka lebih senang dipanggil dengan Tuli daripada Tunarungu. Sebagai bahasa yang digunakan sehari-hari membuat teman Tuli mendapatkan aksessibilitas dalam memenuhi hak-hak mereka dan dukungan dari teman-teman dengar maupun teman-teman Tuli.  Dalam penelitian ini, penulis menggunakan metode penelitian kualitatif dengan wawancara, studi dokumentasi dan observasi untuk mengetahui dan mendeskripsikan bentuk dukungan sosial yang diberikan oleh Gerakan untuk Kesejahteraan Tunarungu Indonesia (GERKATIN) kepada teman Tuli. Juga meneliti tentang pengaruh teman Tuli yang telah bergabung di organisasi ini. Hasil penelitian menunjukkan bahwa dukungan sosial GERKATIN meliputi: (1) dukungan sosial, yaitu pada aspek dukungan informatif seperti dengan adanya Juru Bahasa Isyarat (JBI), dan  sosial media yang membantu teman Tuli mengakses informasi; (2) dukungan emosional, seperti teman sharing antar sesama anggota; (3) dukungan instrumental, seperti tempat-tempat belajar BISINDO sebagai akses sosialisasi kepada masyarakat; (4) dukungan penghargaan, seperti JBI di televisi atau di acara-acara formal; dan (5) dukungan kelompok, seperti berbagi rasa antar sesama teman Tuli. Pengaruh langsung seperti dukungan dan komunikasi intensif yang diberikan oleh sesama anggota, pengaruh tidak langsung, yaitu adanya tempat berbagi kisah, dan pengaruh interaktif seperti GERKATIN mempunyai pengaruh kepada teman Tuli untuk menjadikan organisasi ini sebagai wadah kesejahteraan mereka seperti terhindarnya dari diskriminasi yang mempunyai banyak dampak negatif. 

scholarly journals SOCIAL CLIMBER IDENTITY AND MEMORY : POTRET DIRI SEBAGAI OBJEKTIVITAS HIPERREALITAS KEHIDUPAN DAN DEGRADASI MEMORI

POPULIKA ◽  
2020 ◽  
Vol 8 (1) ◽  
pp. 34-39
Author(s):  
Nurfian Yudhistira
Keyword(s):  
Social Media ◽  
Communication Technology ◽  
Digital Technology ◽  
Smart Phone ◽  
Technology Industry ◽  
Online Social Media ◽  
Access Information ◽  
Online Access ◽  
Over Time ◽  
Social Climbing

This study examines the development of photographic technology that facilitates the development of the phenomenon of social climbing by highlighting the hyperreality of social media, thereby resulting in the emergence of a new identity for social climbers. Photography technology has evolved over time. Digital technology has created instant technology that makes it easy for camera users to operate cameras with automatic adjustment features, therefore the technology industry is constantly looking for ways to develop and make smartphones. Smartphones integrate image and communication technology into one device, making it easier for users to communicate. This smart phone supports online access to social media because of its features that can be connected to the internet. So anyone can share their photography using this tool and also social media. social media makes it easy for everyone to access information including personal activities that are shared, so that phenomena that are often referred to as social climbing phenomena are phenomena marked by social media users who are competing to improve their social status on online social media. The phenomenon of social climbing makes someone create a new identity for themselves on social media. Creating a life that is exaggerated from its original reality or also called hyperreality. This study aims to provide education related to the use of photography and social media, so that people do not fall into the phenomenon of false identities in social media.

scholarly journals An Online Support Group Intervention for Adolescents Living with HIV in Nigeria: A Pre-Post Test Study (Preprint)

2018 ◽  
Author(s):  
Lisa Dulli ◽  
Kathleen Ridgeway ◽  
Catherine Packer ◽  
Kate F Plourde ◽  
Tolulope Mumuni ◽  
...  
Keyword(s):  
Social Support ◽  
Social Media ◽  
Support Groups ◽  
Support Group ◽  
Hiv Treatment ◽  
Structured Interviews ◽  
Hiv Knowledge ◽  
Test Study ◽  
Post Test ◽  
Living With Hiv

BACKGROUND Adolescents living with HIV (ALHIVs) enrolled in HIV treatment services experience greater loss to follow-up and suboptimal adherence than other age groups. HIV-related stigma, disclosure-related issues, lack of social support, and limited HIV knowledge impede adherence to antiretroviral therapy (ART) and retention in HIV services. The 90-90-90 goals for ALHIVs will only be met through strategies targeted to meet their specific needs. OBJECTIVES We aimed to evaluate the feasibility of implementing a social media-based intervention to improve HIV knowledge, social support, ART adherence, and retention among ALHIV aged 15-19 years on ART in Nigeria. METHODS We conducted a single-group pre-post test study from June 2017 to January 2018. We adapted an existing support group curriculum and delivered it through trained facilitators in 5 support groups by using Facebook groups. This pilot intervention included five 1-week sessions. We conducted structured interviews with participants before and after the intervention, extracted clinical data, and documented intervention implementation and participation. In-depth interviews were conducted with a subset of participants at study completion. Quantitative data from structured interviews and group participation data were summarized descriptively, and qualitative data were coded and summarized. RESULTS A total of 41 ALHIV enrolled in the study. At baseline, 93% of participants reported existing phone access; 65% used the internet, and 64% were Facebook users. In addition, 37 participants completed the 5-session intervention, 32 actively posted comments in at least one session online, and at least half commented in each of the 5 sessions. Facilitators delivered most sessions as intended and on-time. Participants were enthusiastic about the intervention. Aspects of the intervention liked most by participants included interacting with other ALHIVs; learning about HIV; and sharing questions, experiences, and fears. The key recommendations were to include larger support groups and encourage more group interaction. Specific recommendations on various intervention components were made to improve the intervention. CONCLUSIONS This novel intervention was feasible to implement in a predominantly suburban and rural Nigerian setting. Social media may be leveraged to provide much-needed information and social support on platforms accessible and familiar to many people, even in resource-constrained communities. Our findings have been incorporated into the intervention, and an outcome study is underway. CLINICALTRIAL ClinicalTrials.gov NCT03076996; https://clinicaltrials.gov/ct2/show/NCT03076996 (Archived by WebCite at http://www.webcitation.org/73oCCEBBC).

WED 078 ‘not just a headache’: social media use in people with migraine

2018 ◽  
Vol 89 (10) ◽  
pp. A8.4-A9
Author(s):  
Ridsdale Leone ◽  
Swindale Rosanna ◽  
Keighley Peter ◽  
Pearson Carly
Keyword(s):  
Social Support ◽  
Social Media ◽  
Media Use ◽  
Treatment Options ◽  
Structured Interviews ◽  
Social Media Use ◽  
Online Groups ◽  
Online Behaviour ◽  
The Impact ◽  
Privacy Issues

Introduction‘Invisible’ conditions like migraine may leave individuals seeking support and information. We aimed to describe how people with migraines use and benefit from social media and to identify harms of social media use.MethodsTwenty participants were recruited via migraine charities. Semi-structured interviews were conducted with questions based on a topic guide. Interviews were transcribed and analysed using thematic analysis.ResultsWe found people with migraine use social media to better understand their condition and treatment options. It offers instant access to continuous information and social support from empathic others. Participants viewed social media as an outlet to vent frustrations and to validate their migraine experience. They referred to the invisible and episodic nature of migraine which contributes to misunderstanding of the impact and/or severity of the condition. Some masked their online migraine-related behaviour, using different sites or closed online groups, which sometimes changed their online behaviour in other areas. Harms of social media included inaccuracy of information, occasional negativity, and privacy issues.ConclusionsSocial media can provide people who experience migraines with instant, continuous access to social support and health information, from empathic others. This can validate their illness experience, reassure and help to reduce feelings of isolation.

STUDI KUALITATIF : KEBUTUHAN IBU HAMIL DENGAN DIABETES MELITUS GESTASIONAL DI KABUPATEN KARANGANYAR JAWA TENGAH

2020 ◽  
pp. 17-26
Author(s):  
Arista Apriani ◽  
M Mufdlilah ◽  
Menik Sri Daryanti
Keyword(s):  
Social Support ◽  
Pregnant Women ◽  
Health Center ◽  
Blood Sugar ◽  
Interpretative Phenomenological Analysis ◽  
Health Workers ◽  
Phenomenological Analysis ◽  
Lifestyle Changes ◽  
Structured Interviews ◽  
Diabetes Melitus

ABSTRAK GDM dapat berpotensi menimbulkan komplikasi serius yang dapat mengakibatkan risiko kesehatan jangka pendek dan jangka panjang bagi ibu dan bayinya. diagnosis GDM menimbulkan efek emosional yang negatif. Persepsi ibu hamil tentang GDM dapat memengaruhi perubahan gaya hidup. Garis pertama penatalaksanaan DMG yaitu dengan perubahan gaya hidup. Tujuan menggali secara mendalam kebutuhan ibu dengan diagnosis diabetes melitus gestasional. Metode penelitian kualitatif dengan pendekatan  fenomenologi. Lokasi di Kabupaten Karanganyar yaitu Puskesmas Jaten I, Puskesmas Matesih dan RSUD Kabupaten Karanganyar, pada bulan Oktober 2019 - Januari 2020. Sampel secara criterion sampling Pengumpulan data dengan semistructure interview dengan one on one interview. Uji Keabsahan Data dengan Credibility pada penelitian ini menggunakan strategi validitas triangulasi, Tranferability, Dependability, Confirmability. Analisis data dengan Interpretative Phenomenological Analysis (IPA). Hasil penelitian kebutuhan ibu hamil dengan DMG teridentifikasi empat tema, yaitu dukungan keluarga dalam hal mengontrol pola makan, mengatarkan periksa ke tenaga kesehatan, dan mengingatkan untuk aktifitas olah raga. Dukungan sosial, yaitu cara mengontrol gula darah. Dukungan tenaga kesehatan, yaitu saran dan motivasi untuk mengontrol gula darah. Informasi mendapat saran atau perawatan DMG dalam kehamilan adalah dari tenaga kesehatan yaitu bidan, dokter, serta selain tenaga kesehatan dari teman dan internet. Kesimpulannya kebutuhan ibu hamil dengan DMG teridentifikasi empat tema, yaitu dukungan keluarga, dukungan sosial, dukungan tenaga kesehatan dan informasi.   Kata kunci: diabetes melitus gestasional, kehamilan, kebutuhan.   ABSTRACT GDM can overcome serious problems that can overcome short-term and long-term health problems for mother and baby. a diagnosis of GDM has a negative emotional effect. Pregnant women 's perception of GDM can affect lifestyle changes. The first line of management of DMG is lifestyle changes. Diagnosis of gestational diabetes mellitus. Qualitative research methods by studying phenomenology. Locations in Karanganyar Regency are Jaten I Health Center, Matesih Health Center and Karanganyar District Public Hospital, in October 2019 - January 2020. Sample sampling criteria Data collection by semi-structured interviews with one-on-one interviews. Data Validity Test with Credibility in this study using the triangulation validity strategy, Transparency, Dependability, Confirmability. Data analysis with Interpretative Phenomenological Analysis (IPA). The results of the study of the needs of pregnant women with DMG identified four themes, namely supporting the family in terms of controlling diet, sending check to health workers, and reminding for sports activities. Social support, which is a way to control blood sugar. Support of Health Workers, namely advice and motivation to control blood sugar. The information obtained from DMG advice or treatment in the assessment is from health workers, namely midwives, doctors, and also health workers from friends and the internet. In conclusion, the needs of pregnant women with DMG identified four themes, namely family support, social support, support of health workers and information.  

Empathy not quarantined: Association between people’s empathy to others and the COVID-19 pandemic situations based on a national survey study (Preprint)

2020 ◽  
Author(s):  
Zhibin Jiang ◽  
Fan Yang ◽  
Bu Zhong ◽  
Xuebing Qin
Keyword(s):  
Social Support ◽  
Social Media ◽  
National Survey ◽  
Low Income ◽  
Rural Areas ◽  
Critical Role ◽  
Affective Response ◽  
Survey Study ◽  
Income Levels ◽  
The Social

BACKGROUND The Covid-19 pandemic had turned the world upside down, but not much is known about how people’s empathy might be affected by the pandemic. OBJECTIVE This study examined 1) how empathy towards others might be influenced by the social support people obtained by using social media; and 2) how the individual demographics (e.g., age, income) may affect empathy. METHODS A national survey (N = 943) was conducted in China in February 2020, in which the participants read three real scenarios about low-income urban workers (Scenario I), small business owners in cities (Scenario II), and farmers in rural areas (Scenario III) who underwent hardship due to COVID-19. After exposure to others’ difficulties in the scenarios, the participants’ empathy and anxiety levels were measured. We also measured the social support they had by using social media. RESULTS Results show that social support not only positively impacted empathy, β = .30, P < .001 for Scenario I, β = .30, P < .001 for Scenario II, and β = .29, P < .001 for Scenario III, but also interacted with anxiety in influencing the degree to which participants could maintain empathy towards others, β = .08, P = .010 for Scenario I, and β = .07, P = .033 for scenario II. Age negatively predicted empathy for Scenario I, β = -.08, P = .018 and Scenario III, β = -.08, P = .009, but not for Scenario II, β = -.03, P = .40. Income levels – low, medium, high – positively predicted empathy for Scenario III, F (2, 940) = 8.10, P < .001, but not for Scenario I, F (2, 940) = 2.14, P = .12, or Scenario II, F (2, 940) = 2.93, P = .06. Participants living in big cities expressed greater empathy towards others for Scenario III, F (2, 940) = 4.03, P =.018, but not for Scenario I, F (2, 940) = .81, P = .45, or Scenario II, F (2, 940) = 1.46, P =.23. CONCLUSIONS This study contributes to the literature by discovering the critical role empathy plays in people’s affective response to others during the pandemic. Anxiety did not decrease empathy. However, those gaining more social support on social media showed more empathy for others. Those who resided in cities with higher income levels were more empathetic during the COVID-19 outbreak. This study reveals that the social support people obtained helped maintain empathy to others, making them resilient in challenging times.

scholarly journals The Impact of Social Media Use on Consumers’ Restaurant Consumption Experiences: A Qualitative Study

2021 ◽  
Vol 13 (12) ◽  
pp. 6581
Author(s):  
Jooyoung Hwang ◽  
Anita Eves ◽  
Jason L. Stienmetz
Keyword(s):  
Decision Making ◽  
Social Media ◽  
Selection Process ◽  
Decision Making Process ◽  
Structured Interviews ◽  
High Standards ◽  
Tourism And Hospitality Industry ◽  
Tourism And Hospitality ◽  
Search For Information ◽  
The Impact

Travellers have high standards and regard restaurants as important travel attributes. In the tourism and hospitality industry, the use of developed tools (e.g., smartphones and location-based tablets) has been popularised as a way for travellers to easily search for information and to book venues. Qualitative research using semi-structured interviews based on the face-to-face approach was adopted for this study to examine how consumers’ restaurant selection processes are performed with the utilisation of social media on smartphones. Then, thematic analysis was adopted. The findings of this research show that the adoption of social media on smartphones is positively related with consumers’ gratification. More specifically, when consumers regard that process, content and social gratification are satisfied, their intention to adopt social media is fulfilled. It is suggested by this study that consumers’ restaurant decision-making process needs to be understood, as each stage of the decision-making process is not independent; all the stages of the restaurant selection process are organically connected and influence one another.

scholarly journals 325 - Relationship quality in dementia: Preliminary longitudinal analyses of the EU-JPND Actifcare cohort study

2020 ◽  
Vol 32 (S1) ◽  
pp. 83-83
Author(s):  
Maria J. Marques ◽  
Bob Woods ◽  
Eva Y.L. Tan ◽  
Marjolein de Vugt ◽  
Frans Verhey ◽  
...  
Keyword(s):  
Social Support ◽  
Cohort Study ◽  
Relationship Quality ◽  
Sense Of Coherence ◽  
Unmet Needs ◽  
Neuropsychiatric Symptoms ◽  
Longitudinal Analyses ◽  
Family Carers ◽  
Over Time

INTRODUCTIONRelationship quality (RQ) in dyads of persons with dementia and their family carers is important both as a clinical outcome and as a determinant of health and quality of life. In previous work we studied RQ using baseline data of a large-scale European longitudinal study on timely access to and use of community formal services in dementia (EU-JPND Acticare). We concluded that neuropsychiatric symptoms and carer stress contributed to discrepancies in RQ ratings within the dyad, which were less favourable when reported by family carers. This and other associations (e.g. between carer-rated RQ and sense of coherence) were cautiously interpreted, in the context of a cross-sectional analysis.OBJECTIVESTo analyse how carer-reported RQ varies over time and to examine its most important influencing factors.METHODSWe present preliminary longitudinal analyses from the Actifcare cohort study of 451 community-dwelling persons with dementia and their primary carers in eight European countries (12-month follow-up). Comprehensive assessments included the Positive Affect Index (PAI) to assess RQ, persons with dementia’s neuropsychiatric symptoms, persons with dementia and carers’ unmet needs, carers’ anxiety and depression, social support, sense of coherence and stress.RESULTSCarers’ mean PAI scores decreased over the 12 -month period. The person with dementia neuropsychiatric symptoms and unmet needs, and carers’ perceived social support were significant predictors of carers’ RQ change.DISCUSSION AND CONCLUSIONWe analysed carer-reported RQ variation over time and predictors in a large European sample of persons with dementia and their family carers. As expected, RQ decreased over the oneyear follow-up period as the disease progressed. Its main predictors in this sample (neuropsychiatric symptoms and the person’s unmet needs, together with carers’ social support) can all influence the impact that caregiving has on the carer and on how time and energy-consuming caregiving is. The role of increased clinical symptoms (also affecting communication difficulties), together with carers’ exhaustion, must be equated. Overall, these results may help us to tailor interventions addressing RQ and potentially improve dementia outcomes.

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