scholarly journals Social Support to Reduce Disease-Related Stigma: Lesson Learned from Corona Virus Disease-19

2021 ◽  
pp. 318-331
Author(s):  
Marizka Khairunnisa ◽  
Cati Martiyana ◽  
Diah Yunitawati ◽  
Leny Latifah ◽  
Yusi Dwi Nurcahyani
Keyword(s):  
Social Support ◽  
Virus Disease ◽  
Public Support ◽  
Community Support ◽  
Phenomenological Approach ◽  
Analysis Data ◽  
Telephone Interviews ◽  
Related Stigma ◽  
Received Social Support ◽  
Main Support

Stigma associated with COVID-19 is intense. One of the factors that can help in reducing stigma is social support. This research aims to explore stigma, efforts to deal with stigma, and support for people diagnosed with COVID-19. The research design is qualitative research using phenomenological approach and analyzed using thematic content analysis. Data collection was carried out in July-August 2020 through telephone interviews with eleven positive COVID-19 informants. Of the eleven informants who were COVID-19 positive, eight of them experienced stigma. Nonetheless, both stigmatized and non-stigmatized informants received social support. Friends and family are the main sources of support for stigmatized informants. Meanwhile, for non-stigmatized informants, the main support was obtained from the community. The results showed that social support can reduce or even eliminate stigma. The social support that comes from the community is the most influential in reducing stigma. From this research, public support is more efficient compared to individual support. When the community provides support together, the risk of stigma can be reduced. The results of this study can be used to prevent stigmatizing behavior by strengthening social support, especially community support.

Does Ego-Resilience Impact Friendship Outcomes?

2016 ◽  
Vol 37 (2) ◽  
pp. 128-134 ◽  
Author(s):  
Elizabeth B. Lozano ◽  
Mahzad Hojjat ◽  
Judith Sims-Knight
Keyword(s):  
Social Support ◽  
Young Adults ◽  
Indirect Effects ◽  
Positive Emotions ◽  
Positive Outcomes ◽  
Ego Resilience ◽  
Maintenance Behaviors ◽  
Received Social Support ◽  
Trait Resilience ◽  
The Relationship

Abstract. The present study examined the relationship between resilience and positive outcomes in friendships of young adults. SEM and bootstrapping analyses were performed to test whether positive emotions mediate the relationship between ego-resilience and enhanced friendship outcomes. Findings revealed indirect effects for friendship closeness, maintenance behaviors, and received social support. Our findings demonstrate the importance of positive emotions and its connection with trait resilience in the realm of friendships.

LAYANAN POS PENDIDIKAN ANAK USIA DINIDALAM PENINGKATAN AKSES PENDIDIKAN ANAK USIA DINI

2018 ◽  
Vol 1 (1) ◽  
pp. 1
Author(s):  
J.M Tedjawati
Keyword(s):  
Early Childhood ◽  
Early Childhood Education ◽  
High School Graduates ◽  
Public Support ◽  
Community Support ◽  
Family Welfare ◽  
Childhood Education ◽  
Education And Health ◽  
Provision Of Services ◽  
Qualitative Descriptive

AbstrakTujuan penelitian ini yaitu untuk mendeskripsikan dan menganalisis peran layanan Pos-Pendidikan Anak Usia Dini (Pos-PAUD) dalam meningkatkan akses PAUD yang meliputi dukungan orangtua dan masyarakat, serta pelaksanaan layanan Pos-PAUD. Penelitian ini menggunakan pendekatan deskriptif kualitatif. Informasi layanan Pos-PAUD dikumpulkan dari empat kabupaten/kota pada tahun 2013. Hasil studi menemukan pertama, semua orang tua menyadari pentingnya dan bermanfaatnya. Selain itu, dukungan masyarakat didasarkan pada penerimaan program PAUD dan ikut serta dalam sosialisasi pentingnya PAUD. Kedua, layanan Pos-PAUD dilaksanakan dengan adanya peserta didik di sekitar lembaga; pendidiknya dari kader Posyandu, pembinaan kesejahteraan keluarga, bina keluarga balita, yang relatif hanya lulusan Sekolah Menengah Atas dan bekerja dengan “sukarela” tanpa imbalan; sarana prasarana dan biaya masih terbatas dalam penyelenggaraannya. Tingkat capaian tumbuhkembang anak dipengaruhi oleh pemberian layanan dalam pendidikan dan kesehatan. Pendidikan dilaksanakan antara lain melalui penanaman nilai agama (berdoa), jalinan komunikasi dan kerjasama antar anak, sehingga anak lebih mandiri dan mengalami perubahan berpikir. Layanan kesehatan dilakukan dengan penimbangan berat dan tinggi badan, imunisasi dan pemberian makanan dengan gizi seimbang melalui pemberian sehingga diperoleh fisik yang sehat. AbstractThe purpose of this study is to describe and analyze the role of Early Childhood Education Post (ECD Post) in improving access to early childhood education including the parental and community support, as well as the implementation of ECD Post service. This study used a qualitative descriptive approach. Information about the ECD Post service was collected from four districts/cities in 2013. The study found, first, all parents were aware of the importance and benefits of early childhood education. In addition, public support was based on the acceptance of early childhood programs and participation in the importance of early childhood dissemination. Second, ECD Post service was conducted by the participation of learners living close to the institution; educators were from Posyandu, fostering family welfare, parenting education (Bina Keluarga Balita), who were relatively only high school graduates and working voluntarily without reward; the implementation was running on limited infrastructure and funding. The level of children’s growth and development were affected by the provision of services in education and health. Education was carried out through the cultivation of religious values (praying) and also communication and cooperation among children in order to encourage children’s independency and a better thought process. Health services were performed by weight and height control, immunization, and provision of balanced nutrition through various meal menu in order to obtain a healthy physique.

scholarly journals ‘Somebody stuck me in a bag of sand’: Lived experiences of the altered and uncomfortable body after stroke

2021 ◽  
pp. 026921552110007
Author(s):  
Hannah Stott ◽  
Mary Cramp ◽  
Stuart McClean ◽  
Ailie Turton
Keyword(s):  
Support Groups ◽  
Phenomenological Study ◽  
Community Support ◽  
Phenomenological Approach ◽  
The Body ◽  
Stroke Survivors ◽  
Post Stroke ◽  
Personal Perceptions ◽  
Psychological Sense ◽  
Qualitative Phenomenological

Objective: This study explored stroke survivors’ experiences of altered body perception, whether these perceptions cause discomfort, and the need for clinical interventions to improve comfort. Design: A qualitative phenomenological study. Setting: Participants’ homes. Participants: A purposive sample of 16 stroke survivors were recruited from community support groups. Participants (median: age 59; time post stroke >2 years), were at least six-months post-stroke, experiencing motor or sensory impairments and able to communicate verbally. Interventions: Semi-structured, face-to-face interviews were analysed using an interpretive phenomenological approach and presented thematically. Results: Four themes or experiences were identified: Participants described (1) a body that did not exist; (2) a body hindered by strange sensations and distorted perceptions; (3) an uncontrollable body; and (4) a body isolated from social and clinical support. Discomfort was apparent in a physical and psychological sense and body experiences were difficult to comprehend and communicate to healthcare staff. Participants wished for interventions to improve their comfort but were doubtful that such treatments existed. Conclusion: Indications are that altered body perceptions cause multifaceted physical and psychosocial discomfort for stroke survivors. Discussions with patients about their personal perceptions and experiences of the body may facilitate better understanding and management to improve comfort after stroke.

scholarly journals Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer

2021 ◽  
pp. 026921632110002
Author(s):  
Ping Guo ◽  
Sawsan Alajarmeh ◽  
Ghadeer Alarja ◽  
Waleed Alrjoub ◽  
Ayman Al-Essa ◽  
...  
Keyword(s):  
Social Support ◽  
Qualitative Study ◽  
Advanced Cancer ◽  
Psychosocial Support ◽  
Large Population ◽  
Community Support ◽  
Support Network ◽  
Psychosocial Needs ◽  
Physical And Mental Health ◽  
The Impact

Background: Although palliative care is now an essential health service under Universal Health Coverage, ensuring access and appropriate care for refugees is a specific challenge for this large population. Aim: To identify the needs and experiences of adult refugees in Jordan with advanced cancer and informal caregivers. Design: A qualitative study using semi-structured interviews. Setting/participants: Participants were purposively sampled at two Jordanian hospitals to achieve heterogeneity by age, gender, country of origin, and primary diagnosis. Results: Twenty-nine refugees (22 patients, 7 caregivers) participated, and four themes were generated: (1) Psychological distress and sustaining social support. Refugees often experienced unmet psychosocial needs. However, psychosocial support was reported either absent or limited. (2) Knowledge and uncertainty. Lack of information and poor communication between healthcare providers and patients caused significant distress due to uncertainty. (3) Family anxiety and support roles. Being away from the home country cut patients and caregivers off from their wider social support network, which added increased anxiety and responsibilities to caregivers. (4) Compounded trauma and poverty. Many refugees have experienced trauma related to war that may affect their physical and mental health. They faced serious financial crises caused by the rising cost of medicines and treatment. Conclusions: This study reveals the impact of fractured families and networks on social support in advanced cancer, and the compounding trauma of the disease for refugees. Detailed person-centred assessment and emphasis on psychosocial support is essential, and home-based care should not presume community support for patients to remain at home.

scholarly journals Immunogenetic Predictors of Severe COVID-19

Vaccines ◽  
2021 ◽  
Vol 9 (3) ◽  
pp. 211
Author(s):  
Anna Malkova ◽  
Dmitriy Kudlay ◽  
Igor Kudryavtsev ◽  
Anna Starshinova ◽  
Piotr Yablonskiy ◽  
...  
Keyword(s):  
Genetic Factors ◽  
Virus Disease ◽  
Analysis Data ◽  
Published Data ◽  
Diagnostic Significance ◽  
Life Threatening ◽  
Coronavirus Infection ◽  
Angiotension Converting Enzyme ◽  
Related Proteins

According to an analysis of published data, only 20% of patients with the new coronavirus infection develop severe life-threatening complications. Currently, there are no known biomarkers, the determination of which before the onset of the disease would allow assessing the likelihood of its severe course. The purpose of this literature review was to analyze possible genetic factors characterizing the immune response to the new coronavirus infection that could be associated with the expression of angiotension-converting enzyme 2 (ACE-2) and related proteins as predictors of severe Corona virus disease 2019 (COVID-19). We analyzed original articles published in Medline, PubMed and Scopus databases from December 2019 to November 2020. For searching articles, we used the following keywords: New coronavirus infection, Severe acute respiratory syndrome-related coronavirus 2 (SARS-CoV-2), COVID-19, severe course, complications, thrombosis, cytokine storm, ACE-2, biomarkers. In total, 3714 publications were selected using the keywords, of which 8 were in congruence with all the criteria. The literature analysis of the association of immunogenic characteristics and the expression of ACE-2 and related proteins with the development of severe COVID-19 revealed following genetic factors: HLA-B*46:01 genotype, CXCR6 gene hypoexpression, CCR9 gene expression, TLR7, rs150892504 mutations in the ERAP2 gene, overexpression of wild-type ACE-2, TMPRSS2 and its different polymorphisms. Genes, associated with the severe course, are more common among men. According to the analysis data, it can be assumed that there are population differences. However, the diagnostic significance of the markers described must be confirmed with additional clinical studies.

scholarly journals Empowerment among adult patients with type 2 diabetes: age differentials in relation to person-centred primary care, community resources, social support and other life-contextual circumstances

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Nina Simonsen ◽  
Anne M. Koponen ◽  
Sakari Suominen
Keyword(s):  
Social Support ◽  
Community Health ◽  
Age Groups ◽  
Community Support ◽  
Community Resources ◽  
Age Group ◽  
Health Issues ◽  
Younger Adults

Abstract Background Rising prevalence of type 2 diabetes (T2D), also among younger adults, constitutes a growing public health challenge. According to the person-centred Chronic Care Model, proactive care and self-management support in combination with community resources enhance quality of healthcare and health outcomes for patients with T2D. However, research is scarce concerning the importance of person-centred care and community resources for such outcomes as empowerment, and the relative impact of various patient support sources for empowerment is not known. Moreover, little is known about the association of age with these variables in this patient-group. This study, carried out among patients with T2D, examined in three age-groups (27–54, 55–64 and 65–75 years) whether person-centred care and diabetes-related social support, including community support and possibilities to influence community health issues, are associated with patient empowerment, when considering possible confounding factors, such as other quality of care indicators and psychosocial wellbeing. We also explored age differentials in empowerment and in the proposed correlates of empowerment. Method Individuals from a register-based sample with T2D participated in a cross-sectional survey (participation 56%, n = 2866). Data were analysed by descriptive statistics and multivariate logistic regression analyses. Results Respondents in the youngest age-group were more likely to have low empowerment scores, less continuity of care, and lower wellbeing than the other age-groups, and to perceive less social support, but a higher level of person-centred care than the oldest group. Community support, including possibilities to influence community health issues, was independently and consistently associated with high empowerment in all three age-groups, as was person-centred care in the two older age-groups. Community support was the social support variable with the strongest association with empowerment across age-groups. Moreover, vitality was positively and diabetes-related distress negatively associated with high empowerment in all age-groups, whereas continuity of care, i.e. having a family/regular nurse, was independently associated in the youngest age-group only. Conclusion Person-centred care and community support, including possibilities to influence community health issues, supports empowerment among adults with T2D. Findings suggest that age is related to most correlates of empowerment, and that younger adults with T2D have specific healthcare needs.

scholarly journals P127: Paramedics perception of working in Nova Scotia’s collaborative emergency centres

CJEM ◽  
2017 ◽  
Vol 19 (S1) ◽  
pp. S121
Author(s):  
S. Whalen ◽  
J. Goldstein ◽  
R. Urquhart ◽  
A. Carter
Keyword(s):  
Health Care ◽  
Nova Scotia ◽  
Care Delivery ◽  
Analysis Data ◽  
Team Work ◽  
Healthcare Team ◽  
Telephone Interviews ◽  
Leadership Support ◽  
Data Collection And Analysis ◽  
Constant Comparative Analysis

Introduction: The Collaborative Emergency Centre (CEC) model of health care delivery was implemented in rural Nova Scotia in July 2011 without an identifiable, directly comparable precedent. It features interprofessional teams working under one roof with the goal of providing improved access to timely primary health care, and appropriate access to 24/7 emergency care. One important component of the CEC model is overnight staffing by a paramedic/registered nurse team consulting with an offsite physician via telephone. Our objective was to ascertain the attitudes, feelings and experiences of paramedics working within the CEC construct. Methods: We conducted a qualitative study, guided by the principles of grounded theory. Semi-structured telephone interviews were carried out by the principal investigator with paramedics with experience working in a CEC in the province of Nova Scotia. Interviews were recorded, transcribed and analyzed. Analysis involved an inductive and deductive grounded approach using constant comparative analysis. Data collection and analysis continued until thematic saturation was reached. Results: Fourteen paramedics participated in the study. The majority were male (n=10, 71%), with a mean age of 44 years (STD=8.8) and mean experience as a paramedic of 14 years (STD=9.7). Four major themes were identified from the data: 1) leadership support, encompassing support from Emergency Health Services and Government prior to and after implementation of the model, 2) team work and collaboration, including interprofessional relationships among members of the healthcare team, 3) value to patients and the communities, and 4) professional and personal benefits of working in CECs. Conclusion: Paramedics have found working in CECs to be both professionally and personally rewarding. They perceive the CEC model to be of great value to the patients and communities it serves. Key lessons that might help future expansion of the model in Nova Scotia and other jurisdictions across the country include the importance of building and strengthening relationships between paramedics and nurses, and the need for greater feedback and support from leadership.

scholarly journals Red de soporte social y apoyo comunitario en miembros de una organización de desplazados por violencia política residentes en Cañete, Perú/Social Support Network and Community Support Among Members of an Organization of Persons Displaced by Political Violence Residing in Cañete, Peru

2018 ◽  
Vol 37 (2) ◽  
pp. 107
Author(s):  
Ma. Teresa Schoof Aguirre ◽  
Eduardo Manzanares Medina ◽  
Miriam Grimaldo Muchotrigo
Keyword(s):  
Social Support ◽  
Political Violence ◽  
Community Support ◽  
Positive Association ◽  
Support Network ◽  
Social Support Network ◽  
Significant Positive Association ◽  
The Social ◽  
La Red ◽  
Violencia Politica

<p><em><strong>Español</strong></em></p><p>El objetivo de la presente investigación fue determinar la relación entre la red de soporte social y el apoyo comunitario en los miembros de una organización de personas desplazadas por violencia política. Para tal fin, el estudio descriptivo correlacional incluyó a 80 participantes (49 mujeres y 31 hombres) con una edad promedio de 45.79 años (DE = 11.41), quienes residían en una provincia de Lima y provenían, en su mayoría, del departamento de Ayacucho. Se les administró el Cuestionario de Red Social (SNQ) y el Cuestionario de Apoyo Comunitario Percibido (PCSQ). Entre los principales resultados, se encontró que el componente Integración y Participación Comunitaria del PCSQ correlaciona con dos funciones y dos categorías del SNQ. Se presenta asociación positiva estadísticamente significativa con la función guía cognitiva (rs = .32), la función socialización (rs = .24) y la categoría satisfacción (rs = .24) y asociación negativa y estadísticamente significativa con la categoría heterogeneidad (rs = -.23). Se discuten las implicancias de los presentes hallazgos.</p><p> </p><p><em><strong>English</strong></em></p><p>The present study’s aim was to determine the relationship between the social support network and community support among members of an organization of persons displaced by political violence. The correlational-descriptive research included 80 individuals (49 females and 31 males) with a mean age of 45.79 years old (SD = 11.41), who reside in a province of Lima and came, mostly, from the department of Ayacucho. Participants completed the Social Network Questionnaire (SNQ), as well as the Perceived Community Support Questionnaire (PCSQ). Among the main findings, we found that the Integration component and Community Participation from the PCSQ correlate with two functions and two categories from the SNQ. Specifically there is a statistically significant positive association with the Cognitive Guide function (rs = .32), the Socialization function (rs = .24) and the Satisfaction category (rs = .24); and a statistically significant negative association with the Heterogeneity category (rs = -.23). Implications of the results obtained will be discussed in the present paper.</p>

scholarly journals ‘I thought it would be a very clearly defined role and actually it wasn’t’: a qualitative study of transition training for pharmacists moving into general practice settings in Wales

BMJ Open ◽  
2021 ◽  
Vol 11 (10) ◽  
pp. e051684
Author(s):  
Sophie Bartlett ◽  
Alison Bullock ◽  
Kate Spittle
Keyword(s):  
General Practice ◽  
Phase 1 ◽  
Qualitative Evaluation ◽  
Phenomenological Approach ◽  
Training Programme ◽  
Learning Needs ◽  
Telephone Interviews ◽  
Need Support ◽  
Interpretative Phenomenological Approach ◽  
Transition Training

ObjectivePharmacists are increasingly contributing to the skill mix of general practice surgeries to help alleviate pressures faced by UK doctors working in primary care. However, they need support in overcoming barriers to their integration. The purpose of this work was to evaluate a programme designed to support pharmacists’ transition to working in general practice settings. We explored the learning needs of pharmacists’, the barriers and enablers to their integration and provide recommendations based on our results.InterventionA qualitative evaluation of a 1-year transition programme in Wales starting in September 2018 to support pharmacists’ transition to working in general practice settings.Design and settingWe employed an interpretative phenomenological approach involving 10 pharmacists across Wales enrolled on the transition to general practice training programme, and their tutors. Data were collected across two sequential phases: in phase 1 telephone interviews were held with pharmacists midway through their training; in phase 2, focus groups were conducted with both pharmacists and tutors towards the end of the programme.ResultsPharmacists enter general practice settings with a variety of prior experience. The programme provided a framework that pharmacists found helpful to map their experience to but the programme needed to be flexible to individual learning needs. The tutor role was typically regarded as the most valuable component, but interaction with the wider general practice team was critical to ease the transition. Pharmacists encountered a lack of clarity about their role which impeded their integration into the workplace team.ConclusionsA formal programme with a designated tutor can support pharmacists’ transition into general practice settings. The programme’s competency framework facilitated reciprocal understanding of the pharmacist’s role in the team, helped to manage expectations and enhanced collaborative practice. Recommendations to facilitate pharmacist integration into general practice settings are provided.

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