SUBJECTIVITIES AND CHALLENGES OF PEOPLE LIVING WITH AN INTESTINAL OSTOMY

Objective: Identify experiences of the person with intestinal ostomy related to their social life. Methods: Descriptive study, qualitative in nature, carried out with ten people with intestinal ostomy. Data collection was performed at the Stomatherapy Service of a teaching hospital in the Federal District, through semi-structured interviews relating to family and social experience before and after the ostomy. Results: Six men and four women participated, with a mean age of 49 years, most with a permanent colostomy. From the analysis, two categories emerged: “What is it like to live with an ostomy and its challenges”; and “Strategies developed in the face of changes”. In the first category, the following stand out: self-care, lack of adequate bathroom, work activity, eating habits, disruption of body image and embarrassing situations. In the second category, they seek to support religiosity, maintain positive feelings and preserve emotional balance. Conclusion: The ostomy interferes with family and social life. It was evident that the person with ostomy develops strategies to face changes. It is believed that social isolation stems, in part, from the lack of information from society, the lack of quality material that offers comfort and safety, and, finally, the lack of adapted public and private bathrooms.

Download Full-text

AB1336-HPR NON-PHARMACOLOGIC TOPICS RELEVANT FOR CLINICAL RESEARCH IN RHEUMATIC DISEASES: THE PATIENT PERSPECTIVE

Annals of the Rheumatic Diseases ◽

10.1136/annrheumdis-2020-eular.700 ◽

2020 ◽

Vol 79 (Suppl 1) ◽

pp. 1956.2-1956

Author(s):

F. Ingegnoli ◽

T. Schioppo ◽

T. Ubiali ◽

S. Ostuzzi ◽

M. Buoli ◽

...

Keyword(s):

Physical Activity ◽

Clinical Research ◽

Environmental Pollution ◽

Rheumatic Diseases ◽

Social Life ◽

Eating Habits ◽

Well Being ◽

Psychological Well Being ◽

Work Activity ◽

Patients Perspective

Background:The research approach on Rheumatic diseases (RDs) is challenging and patient involvement as partners in medical research is an emerging force to obtain relevant information and to add unique skills, values and experiences to research. Despite growing interest in non-pharmacologic aspects of clinical research in RDs, the patients’ perspective is currently poorly explored.Objectives:To identify and rank the priorities for clinical research according to patients’ perspective.Methods:A structured face-to-face meeting between physicians and a patient representative was convened to list the non-pharmacologic topics relevant to RD patients. A cross-sectional no-profit on-line anonymous survey was devised to evaluate opinions of RD patients. They were asked to rate the following topics: food/nutrition, air pollution, smoking, work activity, social participation, physical activity, emotional well-being/stress, alternative medicine, and patient-physician relationship. Moreover, patients were asked to explain for which reason a topic was considered important (disease prevention, halting disease progression, symptoms control and disease cure). The survey was disseminated by ALOMAR (Lombard Association for Rheumatic Diseases) between June and October 2019.Results:200 rheumatic patients completed the survey: 130 inflammatory arthritis, 50 connective tissue diseases/vasculitis, and 20 among osteoarthritis, gout, condrocalcinosis, polymyalgia and primary fibromyalgia. Respondents were 178 female with median age of 50 years and median disease duration of 7 years. Among the nine topics identified, the one most rated by patients was the doctor-patient relationship; 188 (94%) of respondents considered this topic very or extremely important (see table below). In descending order, patients rated very or extremely important: psychological well-being/stress 185 (92.5%), physical activity 155 (77.5%), nutrition, eating habits and alcohol 150 (75%), alternative therapies 144 (72%), work activity 144 (72%), environmental pollution 134 (67%), social life 121 (60.5%) and cigarette smoke 119 (59.5%). The topics considered relevant was perceived to be able to influence disease symptoms. Regarding RD prevention, environmental pollution and cigarette smoking were considered the most important topics, while fewer patients believed that research on other topics could help to stop disease progression or to achieve disease healing.RankingTopicNot or quite importantVery or extremely important1Doctor-patient relationship, n (%)12 (6.0)188 (94.0)2Psychological well-being/stress, n (%)15 (7.5)185 (92.5)3Physical activity, n (%)45 (22.5)155 (77.5)4Nutrition/eating habits/alcohol, n (%)50 (25.0)150 (75.0)5Alternative therapies, n (%)56 (28.0)144 (72.0)6Work activity, n (%)56 (28.0)144 (72.0)7Environmental pollution, n (%)66 (33.0)134 (67.0)8Social life, n (%)79 (39.5)121 (60.5)9Cigarette smoke, n (%)81 (40.5)119 (59.5)Conclusion:This survey highlights the relevance of several unmet needs. The holistic approach, in terms of medical consultation and psychological well-being, is considered the most important component able to influence disease perception. By capturing patient opinions on non-pharmacological topics for clinical research, this survey indicates that the active patient involvement is essential to design successful translational studies and improve clinical outcomes.Acknowledgments:We thank the Lombard Association of Rheumatic Diseases (ALOMAR) for its contribution to plan and disseminate the survey and the group that sustain systemic sclerosis (GILS).Disclosure of Interests:Francesca Ingegnoli: None declared, Tommaso Schioppo: None declared, Tania Ubiali: None declared, Silvia Ostuzzi: None declared, Massimiliano Buoli: None declared, Valentina Bollati: None declared, Roberto Caporali Consultant of: AbbVie; Gilead Sciences, Inc.; Lilly; Merck Sharp & Dohme; Celgene; Bristol-Myers Squibb; Pfizer; UCB, Speakers bureau: Abbvie; Bristol-Myers Squibb; Celgene; Lilly; Gilead Sciences, Inc; MSD; Pfizer; Roche; UCB

Download Full-text

Health Problems and the Use of Medications and Traditional Therapies among Chinese Immigrants Living in Spain

Healthcare ◽

10.3390/healthcare9121706 ◽

2021 ◽

Vol 9 (12) ◽

pp. 1706

Author(s):

Bárbara Badanta ◽

Aura Yolima Rodríguez-Burbano ◽

Angeles C. López-Tarrida ◽

Juan Vega-Escaño ◽

Giancarlo Lucchetti ◽

...

Keyword(s):

Eating Habits ◽

Chinese Immigrants ◽

Diet Therapy ◽

Health Problems ◽

Pharmaceutical Drugs ◽

Structured Interviews ◽

Work Activity ◽

Traditional Remedies ◽

Life Habits ◽

Traditional Therapies

In this study, we investigate the health problems and the use of medications and traditional therapies among Chinese immigrants in the Southern region of Spain. A qualitative study using semi-structured interviews and including 133 immigrants and 7 stakeholders was conducted in 2017. Transcription, literal reading, and theoretical categorization were performed, and a narrative content analysis was carried out. The most common health problems were musculoskeletal (28.6%) and allergies (25.6%) related to work activity and unhealthy lifestyles. Key informants also reported gastric problems, stress, and changes in eating habits, mostly related to their work activity. For these problems, a large number of traditional remedies (herbs, diet therapy, acupuncture, vitamins, etc.) were used, usually combined with pharmaceutical drugs used for colds, flu, general malaise (29%), pain and fever (23%), and allergy drugs (9.2%). Chinese immigrants reported health conditions associated with their working conditions and life habits in Spain, using Traditional Chinese Medicine instead of pharmacological drugs. Understanding these health problems and promoting awareness towards traditional therapies in the healthcare system may help to design public policies and Health Promotion strategies targeting this group.

Download Full-text

Living Together and Eating Together: Changes in Food Choice and Eating Habits during the Transition from Single to Married/Cohabiting

The Sociological Review ◽

10.1111/1467-954x.00089 ◽

1998 ◽

Vol 46 (1) ◽

pp. 48-72 ◽

Cited By ~ 98

Author(s):

Debbie Kemmer ◽

A.S. Anderson ◽

D.W. Marshall

Keyword(s):

Food Choice ◽

Eating Habits ◽

Food Choices ◽

Heterosexual Couples ◽

Structured Interviews ◽

Significant Difference ◽

Living Together ◽

Before And After ◽

Set Up ◽

Main Meal

In 1995 we recruited twenty-two heterosexual couples from Edinburgh and Glasgow to examine the changes which took place in their eating habits and food related activities when they began to live together. Semi-structured interviews were carried out three months before and after moving-in dates and on each occasion both men and women were interviewed separately. Both felt that eating together had a symbolic importance when they set up home together and most couples made efforts to eat a main meal together most evenings, while shopping and eating patterns tended to become more regular and formalised than they were at the pre-marriage/cohabitation stage. In a small majority of cases the women were mainly responsible for buying and preparing food. A significant difference between these women and those of other, earlier studies is that they tended to be less deferential to their husbands' food choices. However, associations between women, food and nurturing were evident in the efforts women made to improve their husbands' diets. Where food purchase and preparation were shared, so was choice of food. The goal of enjoying food together was achieved by learning, influence and compromise but no significant gendering of power in food choice was identified.

Download Full-text

1989 göçü sonrası Bulgaristan göçmenlerinin yemek kültüründeki değişim

GÖÇ DERGİSİ ◽

10.33182/gd.v4i2.598 ◽

2017 ◽

Vol 4 (2) ◽

pp. 227-245

Author(s):

Cahit Kahraman ◽

İlhan Güneş ◽

Nanae Kahraman

Keyword(s):

Eating Habits ◽

Supply And Demand ◽

Food Culture ◽

Rapid Progress ◽

Canned Food ◽

Product Range ◽

The World ◽

Before And After ◽

Day By Day ◽

Made In

1989 göçü öncesi, dünyada eşzamanlı olarak gittikçe gelişen ve zenginleşen mutfak kültürü, Bulgaristan Türklerini de etkilemiştir. Pazardaki çeşitlilik arttıkça, yemek alışkanlıkları da değişime uğramıştır. Büyük göçten sadece 30-40 sene evvel kısıtlı imkânlar ile sınırlı sayıda yemek çeşidi üretilirken, alım gücünün artmasıyla yemek kültüründe de hızlı gelişmeler olmuştur. Artan ürün çeşitliliği yemeklere de yansımış, farklı lezzetler mutfaklara girmiştir. Göçmen yemekleri denilince hamur işleri, börek ve pideler akla gelir. Ayrıca, göçmenlerin çok zengin turşu, komposto ve konserve kültürüne sahip oldukları da bilinir. Bu çalışma, 1989 öncesi Bulgaristan’ın farklı bölgelerinde yaşayan Türklerin yemek alışkanlıklarına ışık tutmakla birlikte, göç sonrasında göçmen mutfak kültüründe bir değişiklik oluşup oluşmadığını konu almaktadır. Bu amaçla, 1989 yılında Türkiye’ye göç etmiş 50 kişiye 8 sorudan oluşan anket düzenlenmiştir. Bu verilerden yola çıkarak oluşan bulgular derlenmiş ve yeni tespitler yapılmıştır. Ayrıca, Türkiye’nin farklı bölgelerine yerleşen göçmenler, kendi göçmen pazarlarını kurmuşlardır. Bulgaristan’dan getirilen ürünlerin bu pazarlarda satılması böyle bir arz talebin hala devam ettiğine işaret etmektedir.ABSTRACT IN ENGLISHThe Diversity in Cuisine Culture of the Immigrants from Bulgaria After 1989 MigrationThe Cuisine culture that has been developing and getting rich day by day contemporaneously in the world before 1989 migration has also had an impact on Bulgarian Turks. By the increase in diversity in the market, eating habits have changed. While producing a limited number of food types with limited opportunities just some 30 or 40 years before the ‘Big Migration’, there has been a rapid progress in food culture by the help of the increase in purchase power. Enhancing product range has been reflected in food, and different tastes have entered the cuisines. When we say immigrant, the first things that come to our mind are pastry, flan and pitta bread. Moreover, it is also known that immigrants have a very rich cuisine culture of pickle, stewed fruit, and canned food. This study aims both to disclose the eating habits of Turks living in different regions of Bulgaria before 1989 and to determine whether there has been a difference in immigrant cuisine culture before and after the migration. For this purpose, a questionnaire consisting of 8 questions has been administered to 50 people who migrated to Turkey in 1989. The results gathered from these data have been compiled and new determinations have been made. In addition, immigrants that settled in different regions of Turkey have set their own immigrant markets. The fact that the products brought from Bulgaria are being sold in these markets shows that this kind of supply and demand still continues.

Download Full-text

Development of John Dewey’s educational philosophy and its implications for children’s education

Policy Futures in Education ◽

10.1177/1478210320987678 ◽

2021 ◽

pp. 147821032098767

Author(s):

Yan–Hong Ye ◽

Yi-Huang Shih

Keyword(s):

World War I ◽

Social Life ◽

Educational Philosophy ◽

Social Issues ◽

World War ◽

Children's Education ◽

Before And After ◽

Children’S Education ◽

Problem Solving Process ◽

Continuous Use

This study explores the role of John Dewey’s educational philosophy before and after World War I. Before World War I, Dewey’s educational philosophy emphasized individualized and socialized development for learners, importance of children’s education, and encouragement of diverse and creative educational measures. Although these views did not change significantly after World War I, Dewey reflected on the connection between education and social life to allow teachers to fulfill their social responsibilities and to integrate various social issues into teaching regimes to inspire children and create a habit of exploring experience. This study concludes that a democratic education allows children to participate in the problem–solving process, that continuous use of real social issues enhances democratic literacy for children, and that the quality of children’s education depends on teachers’ commitment to social responsibility.

Download Full-text

Body Mass, Physical Activity and Eating Habits Changes during the First COVID-19 Pandemic Lockdown in Poland

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18115682 ◽

2021 ◽

Vol 18 (11) ◽

pp. 5682

Author(s):

Hubert Dobrowolski ◽

Dariusz Włodarek

Keyword(s):

Physical Activity ◽

Body Weight ◽

Body Mass ◽

Social Life ◽

Eating Habits ◽

High Energy ◽

High Energy Density ◽

Average Weight ◽

Study Participants ◽

The Impact

The outbreak of the COVID-19 pandemic caused a number of changes in social life around the world. In response to the growing number of infections, some countries have introduced restrictions that may have resulted in the change of the lifestyle. The aim of our study was to investigate the impact of the lockdown on body weight, physical activity and some eating habits of the society. The survey involving 183 people was conducted using a proprietary questionnaire. The mean age of the study participants was 33 ± 11 and mean height 169 ± 8 cm. An average increase in body weight was observed in 49.18% by 0.63 ± 3.7 kg which was the result of a decrease in physical activity and an increase in food consumption. We also observed a decrease in PAL from 1.64 ± 0.15 to 1.58 ± 0.13 and changes in the amount of food and individual groups of products consumption, including alcohol. Among the study participants who did not lose body mass, there was an average weight gain of 2.25 ± 2.5 kg. In conclusion, an increase of weight was shown in about half of the respondents in the study group which was associated with a decrease in physical activity and an increase in the consumption of total food and high energy density products.

Download Full-text

Drivers of Broad-Spectrum Antibiotic Overuse across Diverse Hospital Contexts—A Qualitative Study of Prescribers in the UK, Sri Lanka and South Africa

Antibiotics ◽

10.3390/antibiotics10010094 ◽

2021 ◽

Vol 10 (1) ◽

pp. 94

Author(s):

Carolyn Tarrant ◽

Andrew M. Colman ◽

David R. Jenkins ◽

Edmund Chattoe-Brown ◽

Nelun Perera ◽

...

Keyword(s):

South Africa ◽

Sri Lanka ◽

Antimicrobial Stewardship ◽

Broad Spectrum ◽

Low Income ◽

System Level ◽

Comparative Approach ◽

Structured Interviews ◽

Public And Private ◽

The Uk

Antimicrobial stewardship programs focus on reducing overuse of broad-spectrum antibiotics (BSAs), primarily through interventions to change prescribing behavior. This study aims to identify multi-level influences on BSA overuse across diverse high and low income, and public and private, healthcare contexts. Semi-structured interviews were conducted with 46 prescribers from hospitals in the UK, Sri Lanka, and South Africa, including public and private providers. Interviews explored decision making about prescribing BSAs, drivers of the use of BSAs, and benefits of BSAs to various stakeholders, and were analyzed using a constant comparative approach. Analysis identified drivers of BSA overuse at the individual, social and structural levels. Structural drivers of overuse varied significantly across contexts and included: system-level factors generating tensions with stewardship goals; limited material resources within hospitals; and patient poverty, lack of infrastructure and resources in local communities. Antimicrobial stewardship needs to encompass efforts to reduce the reliance on BSAs as a solution to context-specific structural conditions.

Download Full-text

Twelve Years of the Italian Program to Enhance Relational and Communication Skills (PERCS)

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18020439 ◽

2021 ◽

Vol 18 (2) ◽

pp. 439

Author(s):

Lidia Borghi ◽

Elaine C. Meyer ◽

Elena Vegni ◽

Roberta Oteri ◽

Paolo Almagioni ◽

...

Keyword(s):

Communication Skills ◽

Repeated Measures ◽

Behavioral Changes ◽

Chi Square ◽

Future Directions ◽

Public And Private ◽

Learner Centered ◽

Difficult Conversations ◽

Booster Sessions ◽

Before And After

To describe the experience of the Italian Program to Enhance Relations and Communication Skills (PERCS-Italy) for difficult healthcare conversations. PERCS-Italy has been offered in two different hospitals in Milan since 2008. Each workshop lasts 5 h, enrolls 10–15 interdisciplinary participants, and is organized around simulations and debriefing of two difficult conversations. Before and after the workshops, participants rate their preparation, communication, relational skills, confidence, and anxiety on 5-point Likert scales. Usefulness, quality, and recommendation of the program are also assessed. Descriptive statistics, t-tests, repeated-measures ANOVA, and Chi-square were performed. A total of 72 workshops have been offered, involving 830 interdisciplinary participants. Participants reported improvements in all the dimensions (p < 0.001) without differences across the two hospitals. Nurses and other professionals reported a greater improvement in preparation, communication skills, and confidence, compared to physicians and psychosocial professionals. Usefulness, quality, and recommendation of PERCS programs were highly rated, without differences by discipline. PERCS-Italy proved to be adaptable to different hospital settings, public and private. After the workshops, clinicians reported improvements in self-reported competencies when facing difficult conversations. PERCS-Italy’s sustainability is based on the flexible format combined with a solid learner-centered approach. Future directions include implementation of booster sessions to maintain learning and the assessment of behavioral changes.

Download Full-text

Impact of COVID-19 Pandemic on Retail Structure in Barcelona: From Tourism-Phobia to the Desertification of City Center

Sustainability ◽

10.3390/su13158215 ◽

2021 ◽

Vol 13 (15) ◽

pp. 8215

Author(s):

Lluís Frago Clols

Keyword(s):

Multiple Scales ◽

Real Estate Market ◽

Structured Interviews ◽

City Center ◽

Urban Theory ◽

The Real Estate ◽

Tourist Flows ◽

Before And After ◽

The Impact ◽

The City

COVID-19 has meant major transformations for commercial fabric. These transformations have been motivated by the collapse of consumer mobility at multiple scales. We analyzed the impact of the collapse of global tourist flows on the commercial fabric of Barcelona city center, a city that has been a global reference in over-tourism and tourism-phobia. Fieldwork in the main commercial areas before and after the pandemic and complementary semi-structured interviews with the main agents involved highlight the relationship between global tourist flows and commercial fabric. The paper shows how the end of global tourism has meant an important commercial desertification. The end of the integration of the city center into global consumer flows has implications for urban theory. It means a downscaling of the city center and the questioning of traditional center-periphery dynamics. It has been shown that the tourist specialization of commerce has important effects on the real estate market and makes it particularly vulnerable. However, the touristic specialization of commercial activities as a strategy of resilience has also been presented. This adaptation faces the generalized commercial desertification that drives the growing concentration of consumption around the online channel.

Download Full-text

Lifestyle Changes Among Medical Students During COVID-19 Pandemic: A Multicenter Study Across Nine Countries

Health Education & Behavior ◽

10.1177/10901981211019292 ◽

2021 ◽

pp. 109019812110192

Author(s):

Francisco Perez-Dominguez ◽

Francisca Polanco-Ilabaca ◽

Fernanda Pinto-Toledo ◽

Daniel Michaeli ◽

Jadi Achiardi ◽

...

Keyword(s):

Medical Students ◽

Online Education ◽

Physical Health ◽

Latin American ◽

Eating Habits ◽

Lifestyle Changes ◽

Private Life ◽

Psychological Status ◽

Emotional Instability ◽

Public And Private

The global pandemic caused by coronavirus disease-2019 (COVID-19) disrupted both public and private life for many. Concerning medical students, practical teaching and classrooms were substituted with a virtual curriculum. However, how this new academic environment has affected students’ health and lifestyles has yet to be studied. In this study, we surveyed 2,776 students from nine different countries about changes in their university curricula and potential alterations in their daily habits, physical health, and psychological status. We found negative changes across all countries studied, in multiple categories. We found that 99% of respondents indicated changes in their instruction delivery system, with 90% stating a transition to online education, and 93% stating a reduction or suspension of their practical activities. On average, students spent 8.7 hours a day in front of a screen, with significant differences among countries. Students reported worsened studying, sleeping, and eating habits with substantial differences in Latin American countries. Finally, the participants frequently expressed onset and increase in both mental and physical health symptoms: backache, asthenopia, irritability, and emotional instability. Altogether, these results suggest a potential risk in the health and academic performance of future doctors if these new academic modalities are maintained.

Download Full-text